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International Bureau for Epilepsy

WARNING: Please beware of email phishing scams

Phishing is a scam where fraudulent emails are sent to people in an attempt to trick them into revealing personal or financial information.
There appears to have been an increase in such emails targeting non-profit organisations such as patient associations. Today we have been notified of a number of emails being received that claimed to have been sent by a member of the IBE Executive Committee. These emails are fraudulent and have nothing to do with IBE.

When dealing with uninvited contacts from people or businesses, whether it’s over the phone, by mail, email, in person or on a social networking site, always consider the possibility that the approach may be a scam. Read more

Youth Team

Latest News

IBE Africa
910, 2024

Global Youth Regional Workshops – Express Your Interest Now!

The International Bureau for Epilepsy's Global Youth Team is excited to announce a series of seven virtual workshops taking place this Autumn, specifically designed for young people aged 18-35 with epilepsy. The purpose of the workshops will be to explore the emerging themes of the [...]

2908, 2024

Launch of the Advocate’s Toolkit to Make Epilepsy a Priority in the Americas

Next Thursday, September 5, 2024, the official launch of the "Advocate's Toolkit to Make Epilepsy a Priority in the Americas" will take place during a special webinar event. This important resource has been co-developed by the International Bureau for Epilepsy (IBE) and the Pan American Health [...]

807, 2024

WHO Launches Implementation Toolkit for IGAP

WHO has today published a new implementation toolkit for the Intersectoral global action plan on epilepsy and other neurological disorders (IGAP), outlining specific actions and resources for countries to improve services for people with neurological disorders in preparation for meeting IGAP’s targets for 2031. Neurological conditions [...]

3004, 2024

What Matters To Young People With Epilepsy? Insights From the Global Youth Summit 2023 Report

The International Bureau for Epilepsy (IBE), in collaboration with Epilepsy Ireland, Young Epilepsy (UK), and Epilepsy Connections (Scotland, UK), brought 27 young people with epilepsy together in Dublin, Ireland, for a Global Youth Summit as part of the 35th International Epilepsy Congress. The summit took [...]

1202, 2024

ILAE-IBE Joint Statement on International Epilepsy Day 2024

  Today, on International Epilepsy Day, the International League Against Epilepsy (ILAE) and the International Bureau for Epilepsy (IBE) are calling for accelerated implementation of the Intersectoral Global Action Plan on Epilepsy and other Neurological Disorders. This plan, or IGAP, developed by the World Health [...]

2209, 2023

How to Transform IGAP into Action for People with Epilepsy [Webinar English & Spanish]

It gives us great pleasure to share this IGAP Online Webinar (Spanish and English) which took place on 12 September, organised by FUNDHEMI, FEDE, LICHE, and the IBE to celebrate Latin American Epilepsy Week. The discussion centered on the following topics: What is the WHO Intersectoral [...]

2408, 2023

Amplifying the Voices of Experience: Citizen Journalists at IEC2023

The countdown has begun for the 35th International Epilepsy Congress (IEC2023), which will take place 2 – 6 September 2023, in Dublin, Ireland. This year, an innovative addition promises to infuse the event with fresh perspectives - the participation of citizen journalists - with the [...]

708, 2023

Historic Regional Symposium Unites Epilepsy Community in South East Asia to Prioritize Public Health and Implement WHO’s IGAP

The International Bureau of Epilepsy (IBE), in partnership with the Indian Epilepsy Association (IEA) and Indian Epilepsy Society (IES) convened a historic regional multi-stakeholder symposium “Epilepsy and Society in the Era of IGAP” in Jaipur, India, on 22-23 July 2023. With the overarching goal to [...]

308, 2023

WHO Publishes Intersectoral Global Action Plan on Epilepsy and Other Neurological Disorders in All Six UN Languages

The World Health Organization (WHO) has published the Intersectoral global action plan on epilepsy and other neurological disorders (IGAP) in all six UN languages. In May 2022, WHO Member States adopted the IGAP which aims to improve access to treatment and care and quality of life [...]

108, 2023

WHO Approves Inclusion of Levetiracetam in the Essential Medicine List

We are pleased to inform you that the WHO Committee on Essential Medicines has given its approval for the addition of oral levetiracetam for the treatment of focal-onset and generalized-onset seizures in its Model List of Essential Medicines (EML) and Essential Medicine for Children (EMLc). Parenteral [...]

2907, 2023

International Bureau for Epilepsy selects Golden Light Award Winners 2023

June 29th, 2023 - At a webinar to celebrate young people with epilepsy - in advance of International Youth Day 2023 - IBE announces its bi-annual, global Golden Light Award winners. Three inspiring young people - from Brazil, Tanzania and Ireland - were selected to [...]

2807, 2023

Public Sessions at 35th IEC – Attend In-Person or Virtually

The 35th International Epilepsy Congress is Coming to Ireland! Mark your calendars for this September, as Ireland welcomes the 35th International Epilepsy Congress (IEC). Organized biennially by the International League Against Epilepsy (ILAE) and International Bureau for Epilepsy (IBE), this prestigious event stands as the [...]

1407, 2023

Join the International Bureau for Epilepsy For A Celebration of Young People with Epilepsy

Living with epilepsy as a young person can be challenging, but you don't have to face it alone. IBE, along with our Global Youth Team, is pleased to announce an upcoming event scheduled for July 29th. This event offers a platform where you can [...]

Upcoming Congresses

XIII Congreso Latinoamericano de Epilepsia 15-18 June 2024 Santo Domingo, República Dominicana [...]

15th Asian & Oceanian Epilepsy Congress 20-23 February 2025 New Delhi, India [...]

Latest Publications

  • IBE - International Epilepsy Support

2022/2023 Impact Report

December 19th, 2023|Comments Off on 2022/2023 Impact Report

2022/2023 Impact Report will soon be available, however, our 2022 Audited Accounts are now [...]

  • IBE - International Epilepsy Support

IBE Annual Report 2021

January 17th, 2023|Comments Off on IBE Annual Report 2021

Read the Annual Report

  • IGAP

IGAP Unpacked

January 13th, 2023|Comments Off on IGAP Unpacked

IBE is delighted to share with you our latest publication, entitled [...]

Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.

Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.

Our strategic priorities are to ensure that epilepsy is

recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.

We work to achieve these priorities through a range of programs including:

  • Public Information and Health Education
  • Advocacy
  • International Best Practice Exchange
  • Helping Build Communities of Care

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What is Epilepsy?

Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.

Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.

People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.

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