Europe-wide
Dravet Syndrome European Federation
IBE Associate Chapter
Address: c/o Renata Heusser, Geibelstrasse 8, 8037 Zurich, Switzerland
Website: www.dravet.eu
Email: [email protected]
Contact: Karin Jibaja
Albania
Shoqata “Epilepsia”
Address: Sherbimi I Nerologjise, QSUT
“Nene Tereza”, Tirana, Albania
Contact: Dr Ilirjana Zekja
Austria
Epilepsie Dachverband Österreich (EDO)
Address: Kaltenleutgebnerstraße 24/10.1D, A-1230 Wien
Email: [email protected]
Website: www.epilepsie.at
Contact: Mag. (FH) Michael Alexa (EDÖ Präsident) and Mrs. Liselotte Kastl-Soldan (EDÖ Managing Director)
Belgium
Belgian League Against Epilepsy
(Flemish & French Divison)
Address: Beleidsmedewerker Epilepsie Liga, C. Heymanslaan 10 – 9000 Gent, Belgium
Email: [email protected]
Website: www.epilepsieliga.be
Contact: Ms Emma Staut
Bosnia
Centar protiv epilepsije
Address: Zagrebačka 43, 71000 Sarajevo, Bosnia and Herzegovina
Email: info@centarprotivepilepsije.
Telephone:++38761143510
Website: www.centarepilepsije.com
Contact: Dzenana Rustempasic
Bulgaria
Association of Parents of Children with Epilepsy
Address: Triadica district, Strelbishte Bl 10, entr. G floor 7 ap 67, Sofia 1408, Bulgaria.
Website: www.frde.org
Contact: Ms Veska Sabeva
Croatia
Croatian Association For Epilepsy
Address: University Hospital “Sveti Duh”, Sveti Duh 64, 10000 Zagreb, Croatia
Website: www.epilepsija.hr
Contact: Ana Sruk or Latica Friedirch
Cyprus
Cyprus Association of Support for People with Epilepsy
Address: 8 Epidavrou Str., Platy 2114 Nicosia, Cyprus
Contact: Mrs A Kallimachou
Czech Republic
Spolecnost E
Address: Liskova 3 14200, Prague 4, Czech Republic.
Email: [email protected]
Website: www.spolecnost-e.cz
Contact: Mrs Alena Cervenkova
Czech Republic
EPI Stop
IBE Associate Chapter
Address: Plzeňská 311, 150 00 Praha 5, Czech Republic.
Contact: Ms Katerina Kolarova
Denmark
Epilepsiforeningen
Address: Store Gråbrødrestræde 10, 1., DK-5000 Odense C, Denmark.
Website: www.epilepsiforeningen.dk
Contact: Mr Per Olesen
Denmark
Danish Epilepsy Centre
IBE Associate Chapter
Address: Kolonivej 3, 4293 Dianalund.
Website: www.filadelfia.dk
Contact: Line Overggaard
Estonia
Estonian Epilepsy Association
Address: Puusepp St 2, 51014 Tartu, Estonia.
Contact: Ms Inga Talvik
Finland
Epilepsialiitto
Address: Malmin Kauppatie 26, FIN‐00700, Helsinki, Finland.
Website: www.epilepsia.fi
Contact: Ms. Virpi Tarkiainen
France
Comité National pour L’Epilepsie
Address: 13 rue Fremicourt, 75015, Paris, France.
Website: www.cne.epilepsies.fr
Email: [email protected]
France
Epilepsie‐France
IBE Associate Chapter
Address: 13 rue Fremicourt, 75015, Paris, France.
Website: www.epilepsie-france.fr
Contact: Ms Sophie Chouaki
Georgia
Epilepsy Environment Association Of Georgia
Address: 33 Chavchavadze Ave., S. Khechinashvili University Hospital, Epilepsy and Sleep Centre, 0179 Tbilisi, Georgia.
Contact: Dr Natela Okujava
Georgia
Georgian Society Of Young Epileptologists
IBE Associate Chapter
Address: Institute of Neurology and Neuropsychology, 83 Vaja Phavela Str, Tbilisi, Georgia.
Contact: Dr. Irina Toidze
Germany
Deutsche Epilepsievereinigung E.V.
Address: Zillestrasse 102, D‐10585 Berlin, Germany.
Website: www.epilepsie-vereinigung.de
Contact: Mr Thomas Porschen Email: i[email protected]
Germany
Landesverband für Epilepsie Selbsthilfe Nordrhein-Westfalen E.V.
IBE Associate Chapter
Address: Hoeninger Weg 361, D‐50969, Koeln, Germany.
Email: info@epilepsie‐online.de
Contact: Mr Thomas Porschen
Germany
Epilepsie Empowerment Deutschland e.V.
Address: Kaiserstrasse 217, 76133 Karlsruhe, Germany.
Email: [email protected] Website:www.epipower.de
Contact: Ms Leonie Wollscheid
Greece
Greek National Association Against Epilepsy
Address: Mayromataion 2, 10682, Mouseio, Athens, Greece.
Email: [email protected]
Contact: Dr A Covanis
Iceland
Lauf – The Icelandic Epilepsy Association
Address: Hatun 10, 105 Reykjavik, Iceland.
Website: www.lauf.is
Contact: Ms Frida Bragadottir
Ireland
Epilepsy Ireland
Address: 249 Crumlin Road, Dublin 12, Ireland.
Website: www.epilepsy.ie
Contacts: Mr Peter Murphy
Israel
Israel Epilepsy Association
Address: 4 Avodat Yisrael, Box 1598 Jerusalem 91014, Israel.
Contact: Mrs Anat Goren
Italy
Associazione Italiana Contro L’epilessia (AICE)
Address: Via Garavaglia 5, 40127 Bologna
Website: www.aice-epilessia.it
Contact: Dr Giovanni Battista Pesce
Italy
Associazione Epilessia
IBE Associate Chapter
Address: via San Donato 150 40127 Bologna, Italy
Email: [email protected]
Telephone: 051 0142491 349 2229241 3209525589
Website: www.associazioneepilessia.it/
Contact: Tarcisio Levorato, Andrea Tomasini
Italy
Associazione Fuori dall’Ombra
Address: Via Milazzo 12, 35139 Padova, Italy
Email: [email protected]
Website: https://www.fuoridallombra.org
Contacts: Carlotta Bellon, Stefano Bellon
Italy
Federazione Italiana Epilessie (FIE)
Address: Via Fontana, 11, 20122 Milano, Italy.
Email: [email protected]
Email: [email protected]
Website: www.fiepilessie.it
Contacts: Avvocato Rosa, Anna Cervellione and Simona Borroni
Kazakhstan, Rep Of
SVS Nevro – Movement of Doctors and Patients against Serious Diseases of the Nervous System and Epilepsy
Address: G. Almaty Street, Tulebayeva 38, 050004, Republic of Kazakhstan.
Email: [email protected]
Website: www.ibe.kz
Contact: Dr Sergey Savinov
Italy
DRAVET ITALIA ONLUS
Address: VIA CARDUCCI 6, AFFI (VR)
Email: [email protected]
Telephone: +39 3453589662
Website: www.dravet.it
Contact: Isabella Brambilla
Luxembourg
AAPE Association D’Aide Aux Personnes Epileptiques
Address: 17 rue Charlemagne L-1328 Luxembourg, Luxembourg.
Email: [email protected]
Contacts: Joseph Voss & Maryse Arendt
Malta
Caritas Malta Epilepsy Assoc.
Address: Caritas Community Centre, Mountbatten Street, Hamrun HMR 1577, Malta
Website: www.caritasmalta.org/epilepsy
Email: [email protected]
Contacts: Mr Frank Portelli and Miss Claudine Marika Aitken
Moldova
The Association of Supporting Children With Special Needs
Address: 1-A, Constantin Stere str, Chisinau, MD-2009, Republic of Moldova.
Website: www.asccs.md/en
Contact: Dr Antonina Gavajuc
Netherlands
Epilepsie Vereniging Nederland- EVN
Address: Postbus 8105, 6710 AC Ede, The Netherlands.
Email: [email protected]
Website: www.epilepsievereniging.nl
Netherlands
SEIN
IBE Associate Chapter
Address: Postbus 540, 2130 AM Hoofddorp, Netherlands.
Website: www.sein.nl
Contact: Mr Jean Willem Barzilay
Netherlands
Epilepsiefonds
IBE Associate Chapter
Address: Postbus 270, 3990 GB Houten, Netherlands.
Email: [email protected]
Website: www.epilepsie.nl
Contact: Ms Marissa Piso
Norway
Norsk Epilepsiforbund
Address: Karl Johans Gate 7, No-0154 Oslo, Norway.
Website: www.epilepsi.no
Contact: Sissel Karin Haavaag (Secretary General)
Email: [email protected]
Poland
Polskiego Stowarzyszenia Ludzi Cierpiących na Padaczkę
Address: 15-482 Białystok ul. Fabryczna 57 (XI P.)
Website:www.padaczka.bialystok.pl
Contact: Mr Tadeusz Zarebski
Email: [email protected]
Portugal
EPI – APFAPE
EPI – Associação Portuguesa de Familiares Amigos e Pessoas com Epilepsia
Address: Avenida Bissaya Barreto, No 268 R/c A I 3000-075, Coimbra, Portugal.
Email: [email protected]
Website: www.epilepsia.pt
Contact: Ms Liliana Anastácio
Romania
Association of Epilepsy Patients from Romania – ASPERO
Address: 1, Aleea Circului Street, Romania Telefone: +40 727.740.375; + 40 727.740.376
Website: www.aspe.ro
Contact: Mr Ileana Stefan
Russian Federation
All Russian Charity Foundation “Sodruzhestvo”
Address: Leningradskoye Shosse 114‐57, Moscow 125445, Russia.
Website: www.epileptologhelp.ru
Contact: Dr. Marina Dorofeeva
Russian Federation
Association of Doctors-Epileptologists and Patients
IBE Associate Chapter
Address: Ivana Babushkina st. 3-254, Moscow 117292, Russia.
Email: [email protected]
Website: www.epilepsy.medi.ru
Website: http://www.epilepsia365.ru/
Contact: Contact: Prof. Kira Voronkova
Scotland
Epilepsy Scotland
Address: 48 Govan Road, Glasgow G51 1JL, Scotland.
Website: www.epilepsyscotland.org.uk
Contact: Ms. Lesslie Young
Scotland
Scottish Epilepsy Centre Quarriers
IBE Associate Chapter
Address: Quarriers Village, Bridge of Weir, PA11 3SX, Scotland.
Website: www.scottishepilepsycentre.org.uk
Contact: Lorraine Jackson
Scotland
Epilepsy Connections
IBE Associate Chapter
Address: Suites 129-134 Baltic Chambers, 50 Wellington Street, Glasgow G2 6HJ
Website: www.epilepsyconnections.org.uk
Contact: Ms Shirley Maxwell
Serbia
Serbian Society For Epilepsy
Address: Dr. Subotića str. 6, 11 000 Belgrade, Serbia
Contact: Dr. Maša Kovačević
Slovakia
Aura Zdruzenie Obcanov Slovenska Postihnutych Epilepsiou
Address: PO Box 116, Dubravska cesta 1, 840 05 Bratislava 45, Slovakia.
Contact: Dr Jozef Vrátil
Slovenia
Slovenian League Against Epilepsy
Address: Poljanska cesta 14, Ljubljana S1-1000, Slovenia.
Email: [email protected]
Website: www.epilepsija.org/
Contact: Mrs Svetlana Simic Klobucari
Spain
Federación Española de Epilepsia (FEDE)
Address: Rambla Cataluña 52, Principal 2, 08007 Barcelona, Spain.
Website: www.fedeepilepsia.org
Email: [email protected]
Contact: Elvira Vacas Montero
Spain
National Association of People with Epilepsy – ANPE
IBE Associate Chapter
Address: c/ Quince de Agosto, No 19 BJ D, Madrid 28026
Email: [email protected]
Website: anpeepilepsia.org
Contact: Mrs Isabel Madrid Sánchez#9b7990
Spain
AME – Asociación Madrileña de Epilepsia
IBE Associate Chapter
Address: Calle María Teresa de León 12, Piso 4ºB, 28051 Madrid, Spain
Email: [email protected]
Website: epilepsiaespana.org
Contact: Carmen Carretón Ballester
Switzerland
EPI‐Suisse
Address: Seefeldstrasse 84, Postfach 313, CH‐8034 Zurich, Switzerland.
Contact: Ms Dominique Meier
Sweden
Swedish Epilepsy Association
Address: PO Box 1386, 172 27 Sundbyberg, Sweden.
Website: www.epilepsi.se
Email: [email protected]
Switzerland
Swiss Epilepsy Foundation
IBE Associate Chapter
Address: Bleulerstrasse 60, CH‐8008 Zürich, Switzerland.
Email: [email protected]
Website: www.swissepi.ch
Contact: Dr Marco Beng
Türkiye
Epilepsy and Life Association
Address: Korkut Reis Mah. İlkiz Sokak No 25/4 Sıhhiye Ankara, Türkiye
Contact: Ms Ebru Öztürk
Ukraine
Ukrainian Bureau for Epilepsy
Address: Timizazeva 34, c. Vinnitza, Ukraine.
Website: www.ulae.org.ua
Contact: Dr Olga Mostovaya
United Kingdom
Epilepsy Action
Address: New Anstey House, Gate Way Drive, Yeadon, Leeds LS19 7XY, UK.
Email: [email protected]
Website: www.epilepsy.org.uk
Website: kids.epilepsy.org.uk
Website: youngpeople.epilepsy.org.uk
Contact: Mr Philip Lee
United Kingdom
SUDEP Action
IBE Associate Chapter
Address: 12a Mill Street, Wantage, Oxon, OX12 9AQ, UK.
Website: https://www.sudep.org/
Contact: Jane Hanna – Chief Executive
United Kingdom
Epilepsy Society
IBE Associate Chapter
Address: Chesham Lane, Chalfont St Peter, Buckinghamshire, SL9 ORJ, UK.
Website: www.epilepsysociety.org.uk
Email: Nicola.swanborough@
Contact: Nicola Swanborough
United Kingdom
Ring 20 Research and Support UK
IBE Associate Chapter
Address: 26, Headley Chase, Warley, Brentwood, Essex CM14 SBN, UK
Website: www.ring20researchsupport.co.uk
Email: [email protected]
Contact: Allison Watson
United Kingdom
Young Epilepsy
IBE Associate Chapter
Address: St Piers Lane, Lingfield, Surrey, RH7 6PW, UK
Website: www.youngepilepsy.org.uk /
www.thechannel.org.uk
Email: communications@youngepilepsy.
Contact: Catherine Hodder
