Europe-wide

Dravet Syndrome European Federation
IBE Associate Chapter

Address: c/o Renata Heusser, Geibelstrasse 8, 8037 Zurich, Switzerland
Website: www.dravet.eu
Email: [email protected]
Contact: Karin Jibaja

Albania

Shoqata “Epilepsia”

Address: Sherbimi I Nerologjise, QSUT
“Nene Tereza”, Tirana, Albania
Contact: Dr Ilirjana Zekja

Austria

Epilepsie Dachverband Österreich (EDO)

Address: Kaltenleutgebnerstraße 24/10.1D, A-1230 Wien
Email: [email protected]
Website: www.epilepsie.at
Contact: Mag. (FH) Michael Alexa (EDÖ Präsident) and Mrs. Liselotte Kastl-Soldan (EDÖ Managing Director)

Belgium

Belgian League Against Epilepsy
(Flemish & French Divison)

Address: Beleidsmedewerker Epilepsie Liga, C. Heymanslaan 10 – 9000 Gent, Belgium
Email: [email protected]
Website: www.epilepsieliga.be
Contact: Ms Emma Staut

Bosnia

Centar protiv epilepsije

Address: Zagrebačka 43, 71000 Sarajevo, Bosnia and Herzegovina
Email: info@centarprotivepilepsije.com
Telephone:++38761143510
Website: www.centarepilepsije.com
Contact: Dzenana Rustempasic

Bulgaria

Association of Parents of Children with Epilepsy

Address: Triadica district, Strelbishte Bl 10, entr. G floor 7 ap 67, Sofia 1408, Bulgaria.
Website: www.frde.org
Contact: Ms Veska Sabeva

Croatia

Croatian Association For Epilepsy

Address: University Hospital “Sveti Duh”, Sveti Duh 64, 10000 Zagreb, Croatia
Website: www.epilepsija.hr
Contact: Ana Sruk or Latica Friedirch

Cyprus

Cyprus Association of Support for People with Epilepsy

Address: 8 Epidavrou Str., Platy 2114 Nicosia, Cyprus
Contact: Mrs A Kallimachou

Czech Republic

Spolecnost E

Address: Liskova 3 14200, Prague 4, Czech Republic.
Email: [email protected]
Website: www.spolecnost-e.cz
Contact: Mrs Alena Cervenkova

Czech Republic

EPI Stop
IBE Associate Chapter

Address: Plzeňská 311, 150 00 Praha 5, Czech Republic.
Contact: Ms Katerina Kolarova

Denmark

Epilepsiforeningen

Address: Store Gråbrødrestræde 10, 1., DK-5000 Odense C, Denmark.
Website: www.epilepsiforeningen.dk
Contact: Mr Per Olesen

Denmark

Danish Epilepsy Centre
IBE Associate Chapter

Address: Kolonivej 3, 4293 Dianalund.
Website: www.filadelfia.dk
Contact: Line Overggaard

Estonia

Estonian Epilepsy Association

Address: Puusepp St 2, 51014 Tartu, Estonia.
Contact: Ms Inga Talvik

Finland

Epilepsialiitto

Address: Malmin Kauppatie 26, FIN‐00700, Helsinki, Finland.
Website: www.epilepsia.fi
Contact: Ms. Virpi Tarkiainen

France

Comité National pour L’Epilepsie

Address: 13 rue Fremicourt, 75015, Paris, France.
Website: www.cne.epilepsies.fr
Email: [email protected]

France

Epilepsie‐France
IBE Associate Chapter

Address: 13 rue Fremicourt, 75015, Paris, France.
Website: www.epilepsie-france.fr
Contact: Ms Sophie Chouaki

Georgia

Epilepsy Environment Association Of Georgia

Address: 33 Chavchavadze Ave., S. Khechinashvili University Hospital, Epilepsy and Sleep Centre, 0179 Tbilisi, Georgia.
Contact: Dr Natela Okujava

Georgia

Georgian Society Of Young Epileptologists
IBE Associate Chapter

Address: Institute of Neurology and Neuropsychology, 83 Vaja Phavela Str, Tbilisi, Georgia.
Contact: Dr. Irina Toidze

Germany

Deutsche Epilepsievereinigung E.V.

Address: Zillestrasse 102, D‐10585 Berlin, Germany.
Website: www.epilepsie-vereinigung.de
Contact: Mr Thomas Porschen Email: i[email protected]

Germany

Landesverband für Epilepsie Selbsthilfe Nordrhein-Westfalen E.V.
IBE Associate Chapter

Address: Hoeninger Weg 361, D‐50969, Koeln, Germany.
Email: info@epilepsie‐online.de
Contact: Mr Thomas Porschen

Germany

Epilepsie Empowerment Deutschland e.V.

Address: Kaiserstrasse 217, 76133 Karlsruhe, Germany.
Email: [email protected] Website:www.epipower.de
Contact: Ms Leonie Wollscheid

Greece

Greek National Association Against Epilepsy

Address: Mayromataion 2, 10682, Mouseio, Athens, Greece.
Email: [email protected]
Contact: Dr A Covanis

Iceland

Lauf – The Icelandic Epilepsy Association

Address: Hatun 10, 105 Reykjavik, Iceland.
Website: www.lauf.is
Contact: Ms Frida Bragadottir

Ireland

Epilepsy Ireland

Address: 249 Crumlin Road, Dublin 12, Ireland.
Website: www.epilepsy.ie
Contacts: Mr Peter Murphy

Israel

Israel Epilepsy Association

Address: 4 Avodat Yisrael, Box 1598 Jerusalem 91014, Israel.
Contact: Mrs Anat Goren

Italy

Associazione Italiana Contro L’epilessia (AICE)

Address: Via Garavaglia 5, 40127 Bologna
Website: www.aice-epilessia.it
Contact: Dr Giovanni Battista Pesce

Italy

Associazione Epilessia
IBE Associate Chapter

Address: via San Donato 150 40127 Bologna, Italy
Email: [email protected]
Telephone: 051 0142491 349 2229241 3209525589
Website: www.associazioneepilessia.it/
Contact: Tarcisio Levorato, Andrea Tomasini

Italy

Associazione Fuori dall’Ombra

Address: Via Milazzo 12, 35139 Padova, Italy
Email: [email protected]
Website: https://www.fuoridallombra.org
Contacts: Carlotta Bellon, Stefano Bellon

Italy

Federazione Italiana Epilessie (FIE)

Address: Via Fontana, 11, 20122 Milano, Italy.
Email: [email protected]
Email: [email protected]
Website: www.fiepilessie.it
Contacts: Avvocato Rosa, Anna Cervellione and Simona Borroni

Kazakhstan, Rep Of

SVS Nevro – Movement of Doctors and Patients against Serious Diseases of the Nervous System and Epilepsy

Address: G. Almaty Street, Tulebayeva 38, 050004, Republic of Kazakhstan.
Email: [email protected]
Website: www.ibe.kz
Contact: Dr Sergey Savinov

Italy

DRAVET ITALIA ONLUS

Address: VIA CARDUCCI 6, AFFI (VR)
Email: [email protected]
Telephone: +39 3453589662
Website: www.dravet.it
Contact: Isabella Brambilla

Luxembourg

AAPE Association D’Aide Aux Personnes Epileptiques

Address: 17 rue Charlemagne L-1328 Luxembourg, Luxembourg.
Email: [email protected]
Contacts: Joseph Voss & Maryse Arendt

Malta

Caritas Malta Epilepsy Assoc.

Address: Caritas Community Centre, Mountbatten Street, Hamrun HMR 1577, Malta
Website: www.caritasmalta.org/epilepsy
Email: [email protected]
Contacts: Mr Frank Portelli and Miss Claudine Marika Aitken

Moldova

The Association of Supporting Children With Special Needs

Address: 1-A, Constantin Stere str, Chisinau, MD-2009, Republic of Moldova.
Website: www.asccs.md/en
Contact: Dr Antonina Gavajuc

Netherlands

Epilepsie Vereniging Nederland- EVN

Address: Postbus 8105, 6710 AC Ede, The Netherlands.
Email: [email protected]
Website: www.epilepsievereniging.nl

Netherlands

SEIN
IBE Associate Chapter

Address: Postbus 540, 2130 AM Hoofddorp, Netherlands.
Website: www.sein.nl
Contact: Mr Jean Willem Barzilay

Netherlands

Epilepsiefonds
IBE Associate Chapter

Address: Postbus 270, 3990 GB Houten, Netherlands.
Email: [email protected]
Website: www.epilepsie.nl
Contact: Ms Marissa Piso

Norway

Norsk Epilepsiforbund

Address: Karl Johans Gate 7, No-0154 Oslo, Norway.
Website: www.epilepsi.no
Contact: Sissel Karin Haavaag (Secretary General)
Email: [email protected]

Poland

Polskiego Stowarzyszenia Ludzi Cierpiących na Padaczkę

Address: 15-482 Białystok ul. Fabryczna 57 (XI P.)
Website:www.padaczka.bialystok.pl
Contact: Mr Tadeusz Zarebski
Email: [email protected]

Portugal

EPI – APFAPE
EPI – Associação Portuguesa de Familiares Amigos e Pessoas com Epilepsia

Address: Avenida Bissaya Barreto, No 268 R/c A I 3000-075, Coimbra, Portugal.
Email: [email protected]
Website: www.epilepsia.pt
Contact: Ms Liliana Anastácio

Romania

Association of Epilepsy Patients from Romania – ASPERO

Address: 1, Aleea Circului Street, Romania Telefone: +40 727.740.375; + 40 727.740.376
Website: www.aspe.ro
Contact: Mr Ileana Stefan

Russian Federation

All Russian Charity Foundation “Sodruzhestvo”

Address: Leningradskoye Shosse 114‐57, Moscow 125445, Russia.
Website: www.epileptologhelp.ru
Contact: Dr. Marina Dorofeeva

Russian Federation

Association of Doctors-Epileptologists and Patients
IBE Associate Chapter

Address: Ivana Babushkina st. 3-254, Moscow 117292, Russia.
Email: [email protected]
Website: www.epilepsy.medi.ru
Website: http://www.epilepsia365.ru/
Contact: Contact: Prof. Kira Voronkova

Scotland

Epilepsy Scotland

Address: 48 Govan Road, Glasgow G51 1JL, Scotland.
Website: www.epilepsyscotland.org.uk
Contact: Ms. Lesslie Young

Scotland

Scottish Epilepsy Centre Quarriers
IBE Associate Chapter

Address: Quarriers Village, Bridge of Weir, PA11 3SX, Scotland.
Website: www.scottishepilepsycentre.org.uk
Contact: Lorraine Jackson

Scotland

Epilepsy Connections
IBE Associate Chapter

Address: Suites 129-134 Baltic Chambers, 50 Wellington Street, Glasgow G2 6HJ
Website: www.epilepsyconnections.org.uk
Contact: Ms Shirley Maxwell

Serbia

Serbian Society For Epilepsy

Address: Dr. Subotića str. 6, 11 000 Belgrade, Serbia
Contact: Dr. Maša Kovačević

Slovakia

Aura Zdruzenie Obcanov Slovenska Postihnutych Epilepsiou

Address: PO Box 116, Dubravska cesta 1, 840 05 Bratislava 45, Slovakia.
Contact: Dr Jozef Vrátil

Slovenia

Slovenian League Against Epilepsy

Address: Poljanska cesta 14, Ljubljana S1-1000, Slovenia.
Email: [email protected]
Website: www.epilepsija.org/
Contact: Mrs Svetlana Simic Klobucari

Spain

Federación Española de Epilepsia (FEDE)

Address: Rambla Cataluña 52, Principal 2, 08007 Barcelona, Spain.
Website: www.fedeepilepsia.org

Email: [email protected]
Contact: Elvira Vacas Montero

Spain

National Association of People with Epilepsy – ANPE
IBE Associate Chapter

Address: c/ Quince de Agosto, No 19 BJ D, Madrid 28026
Email: [email protected]
Website: anpeepilepsia.org
Contact: Mrs Isabel Madrid Sánchez#9b7990

Spain

AME – Asociación Madrileña de Epilepsia
IBE Associate Chapter

Address: Calle María Teresa de León 12, Piso 4ºB, 28051 Madrid, Spain
Email: [email protected]
Website: epilepsiaespana.org
Contact: Carmen Carretón Ballester

Switzerland

EPI‐Suisse

Address: Seefeldstrasse 84, Postfach 313, CH‐8034 Zurich, Switzerland.
Contact: Ms Dominique Meier

Sweden

Swedish Epilepsy Association

Address: PO Box 1386, 172 27 Sundbyberg, Sweden.
Website: www.epilepsi.se
Email: [email protected]

Switzerland

Swiss Epilepsy Foundation
IBE Associate Chapter

Address: Bleulerstrasse 60, CH‐8008 Zürich, Switzerland.
Email: [email protected]
Website: www.swissepi.ch
Contact: Dr Marco Beng

Türkiye

Epilepsy and Life Association

Address:  Korkut Reis Mah. İlkiz Sokak No 25/4  Sıhhiye Ankara,  Türkiye
Contact: Ms Ebru Öztürk

Ukraine

Ukrainian Bureau for Epilepsy

Address: Timizazeva 34, c. Vinnitza, Ukraine.
Website: www.ulae.org.ua
Contact: Dr Olga Mostovaya

United Kingdom

Epilepsy Action

Address: New Anstey House, Gate Way Drive, Yeadon, Leeds LS19 7XY, UK.
Email: [email protected]
Website: www.epilepsy.org.uk
Website: kids.epilepsy.org.uk
Website: youngpeople.epilepsy.org.uk
Contact: Mr Philip Lee

United Kingdom

SUDEP Action
IBE Associate Chapter

Address: 12a Mill Street, Wantage, Oxon, OX12 9AQ, UK.
Website: https://www.sudep.org/
Contact: Jane Hanna – Chief Executive

United Kingdom

Epilepsy Society
IBE Associate Chapter

Address: Chesham Lane, Chalfont St Peter, Buckinghamshire, SL9 ORJ, UK.
Website: www.epilepsysociety.org.uk
Email: Nicola.swanborough@epilepsysociety.org.uk
Contact: Nicola Swanborough

United Kingdom

Ring 20 Research and Support UK
IBE Associate Chapter

Address: 26, Headley Chase, Warley, Brentwood, Essex CM14 SBN, UK
Website: www.ring20researchsupport.co.uk
Email: [email protected]
Contact: Allison Watson

United Kingdom

Young Epilepsy
IBE Associate Chapter

Address: St Piers Lane, Lingfield, Surrey, RH7 6PW, UK
Website: www.youngepilepsy.org.uk /
www.thechannel.org.uk
Email: communications@youngepilepsy.org.uk
Contact: Catherine Hodder

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