Epilepsy Africa News

Chairperson & Editor’s message This is the 17th issue of Epilepsy Africa newsletter, now published once every two months. In this report you will find information about the advocacy project funded by the BAND Foundation. The exciting news is that we have contracted Ms Justine Engole to coordinate the project. The project is based in Nairobi, hosted by KAWE, the epilepsy association there. The office will work mainly with five associations that are piloting the advocacy program but in future we want it to work with all associations in the region. So, I wish to take this opportunity to introduce Ms Justine Engole. Ms Engole was employed by the epilepsy association in Uganda, ESAU before we appointed her through competitive interviews. You will hear more about the advocacy project, including a workshop held recently in Nairobi in future issues. Elections for Vice-President/Chairperson are currently ongoing and more information will be provided in the next issue. As some of you already know, I have not made myself available for re-election. It is my hope that the region will elect someone who share a vision of building capacity of our region. In this issue, you will also read about the important work happening [...]

Chairperson & Editor’s message This is the 16th issue of Epilepsy Africa newsletter. In 2018 we published 11 issues, then we took the decision to publish once in two months. In this report you will find information about the advocacy projects funded by the BAND Foundation. The exciting news is that we have so far done very well with our advocacy efforts. On 18 February, we opened our new office in Kenya, hosted by KAWE, the epilepsy association there. We did not only open an office, but we have contracted Justine Engole to run the office coordinating not only the advocacy project but the region. Presently, the office will work mainly with five associations that are piloting the advocacy program but in future we want it to work with all associations in the region including those registered with the IBE, those seeking registration, those starting,community groups, professional associations and training institutions. We believe, if we work together we will have meaningful impact. So, I wish to take this opportunity to introduce Ms Justine Engole. Ms Engole was employed by the epilepsy association in Uganda, ESAU before we appointed her through competitive interviews. Welcome Ms Engole. Lastly, I want to encourage you [...]

Chairperson & Editor’s message This is the 15th issue of Epilepsy Africa newsletter that combines November and December. In this report, you will read about how the Kingdom of Eswatini is preparing for International Epilepsy Day. Michael and Kenneth have provide us with a detailed report that details how they are dealing with epilepsy in Cameroon. Betty has provided us an update of the advocacy project. I want to encourage you to contribute to this newsletter be sending an email to [email protected]. Enjoy your reading. Jacob.     Download the Newsletter  

Chairperson & Editor’s message This is the 14th issue of Epilepsy Africa newsletter. In this report you will find a detailed report about the human rights workshop held in Mauritius. The report was prepared by Ms Nsachilwa, our Secretary who attended the workshop. I wish to take this opportunity to encourage you to take opportunities being announced by the IBE, including promising strategies, golden awards and social accomplishment awards. I also want to encourage you to begin to prepare for International Epilepsy Day next year. We need to do more awareness and advocacy. In the next issue, we will announce countries that are going to implement advocacy projects. Please contribute to this newsletter be sending an email to [email protected]. Enjoy your reading. Jacob.     Download the Newsletter  

Chairperson & Editor’s message This is the 13th issue of Epilepsy Africa newsletter. In this report you will find information about the donation of medication to the epilepsy association in Kenya, KAWE. The report was prepared by Thelma Njamwea and I wish to thank her. The medication was donated by Ben and of the Epilepsy Foundation in the USA. You will also find information and posters for distribution. I want to encourage you to contribute to this newsletter be sending an email to [email protected]. Epilepsy awareness is very important in our African region. Remember to prepare for International Epilepsy Day, 11 February 2019 to increase awareness of epilepsy and reduce stigma. Enjoy your reading. Jacob     Download the Newsletter  

Chairperson & Editor’s message This newsletter has been published each month for a year now. It gives me great pleasure to dedicate my time to this publication. In this 12th edition of Epilepsy Africa news, you will find a report from Cameroon. The cover picture, taken by Dr Daniel Massi, shows participnats of a conference in Cameroon. I wish to thank the team in Cameroon for the work that they are doing. In the same newsletter, you will also find information about projects that were submitted by young people with epilepsy, and a brief report of what is happening now. In the next issue, we will get short reports from the young people who were funded. You will find other exciting articles about epilepsy work being done in the region. I want to encourage you to contribute to this newsletter be sending an email to [email protected]. Enjoy your reading. Jacob.     Download the Newsletter

Chairperson & Editor’s message Welcome to the 11th issue of Epilepsy Africa newsletter. In this newslletter you will find information about two funding opportunities: The Advocacy Project funded by BAND Foudnation and the promising Strategies Project funded by the IBE. I urge you to apply before the deadlines and to ask your AREC team if you have any questions. You will also find a report from Sierra Leone. The call for session topics for the 4th African Epilepsy Congress to be held in Kampala, Uganda from 22-24 August 2019 has closed and I am hoping we will get a good number of presentations from our associations. I want to encourage you to contribute to this newsletter by sending an email to [email protected]. Enjoy your reading. Jacob.     Download the Newsletter  

Chairperson & Editor’s message This is the 10th issue of Epilepsy Africa newsletter. In this report you will find information about projects that were submitted by young people with epilepsy. You will also find reports from chapters and what to expect at the 4th African Epilepsy Congress to be held in Uganda from 22-24 August 2019. You will also find information about the Africa Epilepsy Advocacy (AEA) project. I want to encourage you to contribute to this newsletter be sending an email to [email protected]. Enjoy your reading. Jacob.     Download the Newsletter  

Chairperson & Editor’s message I warmly welcome you to our 9th issue of Epilepsy Africa newsletter. And I have exciting news for all our young people with epilepsy: the IBE is funding projects this year again. Thank you IBE for this kind of support that will allow the region to promote projects by its future leaders. My own vision is for these projects to focus on advocacy through showcasing capabilities (e.g. income project), doing awareness or direct lobbying. Inside this newsletter, you will suggestions on how you can achieve this. You will also find a report of a previous project in Cameroon. By sharing the report, we hope that you will pick important lessons for you to improve your project. Further about advocacy, you will find information about a meeting that I attended in Geneva in May 2018. The meeting was about reducing the challenges people with epilepsy face globally. I am also happy to inform you that while in Geneva, I had a meeting with Mary Secco (IBE Secretary General) and Gardiner Lapham from BAND Foundation, a USA based foundation that has agreed to fund our advocacy project. BAND will fund us through the IBE and I want to encourage [...]

Contents of this Newsletter: Report from Sierra Leone Report from D R Congo Report from Mauritius on Alliance for Rights Africa Towards Disability Inclusion workshop How to ask your government to take action about the WHO Resolution on epilepsy Click here to read the newsletter