IE News Magazine

We had a tremendous reaction to the Yes, I can! photography competition with more than 300 entries from all corners of the world. Our cover for this issue features a happy image, the winning photo in the mobile phone/ tablet category. You can find more winning images in the issue. Joanna Burzec shares with us the story of her very rare form of epilepsy, which involves music, which you will find very interesting indeed. We are grateful to Joanna for sharing her experience with us. Ted Reynolds brings us the next episode of the fascinating story of ILAE, which had been held back from the last issue. Already I am looking forward to Part 10! International Epilepsy Day was particularly successful in the European Parliament, where no less than 35 private meetings were held with Members of the European Parliament. By the end of the event, the membership of the European Advocates for Epilepsy ad-hoc group had risen to 56. You can meet them all beginning on page 10. Also in this issue is news of a very special offer on registration fees for the Epilepsy & Society Conference in Prague, news from Swaziland and Uruguay and much more besides. DOWNLOAD IE [...]

On 12 October, IBE received the news that Hanneke de Boer, one of IBE's longest serving advocates had died. Although many of us knew that she was unwell and not expected to recover, the news was still hard to believe. In this issue we include an obituary for Hanneke. For almost 30 years, she devoted her life to IBE, during which time she met countless people in every region of the world, each one of whom she touched with her energy, her drive and her determination to get things done. We have also tried to include as many photos of Hanneke's time with IBE and we hope that you will enjoy them and remember her with a smile. We also say goodbye to another supporter of the Bureau, Christoph Pachlatko, who died suddenly later in October. But life moves on, and the magazine also brings news of new initiatives. IE News- Issue 4 – 2015 There is the Photo Competition as part of International Epilepsy Day celebrations; a report on the EU funded ESBACE project; and reports from meetings in Italy and Ghana. Held back until next time, due to pressure of space, is the next instalment of the history of [...]

The 31st International Epilepsy Congress was held in Istanbul, Turkey from 5th to 9th September 2015. This edition of IE News was published specially for the Congress. Although only two years, since our last International Congress, there is much we have achieved, and so we take this opportunity to look back on past endeavours, In addition, we also focus on the latest news and events and look forward to the future. IE News: Issue 3 – 2015 : 31st International Congress Issue - Download CLICK TO DOWNLOAD

In this issue ... This issue of the magazine is a clear indication of how busy it has been in the last few months. More significantly, it also shows some very positive advances in the work of IBE to meet its goals. In the last magazine, we reported on the approval of the WHO Resolution on the Global Burden of Epilepsy at the WHO Executive Board meeting in early February. Now, three months later, it is great to be able to report that the resolution had its final approval at the World Health Assembly at the end of May. When you read the report you will see the tremendous level of support that the document obtained from Member States. IE News: Issue 2 – 2015 For more than four years, the Governance Task Force has been reviewing the IBE Constitution and drafted changes are now ready for approval by the General Assembly. A draft, showing the proposed changes and explaining the reason why these are being proposed, has been circulated to members. The report on page 6 explains the process. A small task force, mandated by the President, has been busy preparing a draft strategy document to be presented at the [...]

Download IE News : CLICK HERE In this issue IE News: Issue 1 – 2015 Dear Readers It's been a great few months and, although there have been long hours spent in preparation by IBE and ILAE at leadership level and by IBE and ILAE member associations right around the world, we are now enjoying some fantastic success. First up was approval by the WHO Executive Board of a resolution on epilepsy on Monday 2nd February. This was a landmark day and you can read all about the resolution, the procedures involved in its approval, as well as what happens next, in this issue. Exactly one week later, on Monday 9th February, we celebrated the first International Epilepsy Day. There is always trepidation when a new initiative is introduced but there was no need to fear - the event was embraced by IBE and ILAE members, by people with an interest in epilepsy, and by all those willing to support the cause.  Social media was buzzing and by Tuesday 10th February we found that the hashtag #epilepsyday had appeared on more than 22 million devices and was 'trending' in Ireland! Our cover shows one brave man in Spain who took our [...]

Events for International Epilepsy Day are now happening all around the globe.  We are delighted to bring you this special issue of IE News to commemorate International Epilepsy Day. In order to highlight that this is a combined effort of IBE and ILAE, for the first time we have a joint message from the Presidents of both organisations in our magazine, with Thanos Covanis and Emilio Perucca pictured outside the WHO Executive Board Room in Geneva on the day WHO approved a resolution on epilepsy, on which you will hear much more in the coming days and weeks. IE News : Special Issue Celebrating International Epilepsy Day 2015 CLICK HERE TO DOWNLOAD THE NEWSLETTER

Download Issue 3 – 2014 CLICK HERE In This Issue: IE News: Issue 3 – 2014 66th REGIONAL COMMITTEE OF THE WHO WPR The World Health Organization Regional Committee for the Western Pacific took place in Manila in October to review WHO's work of the previous year and to discuss major health issues. IBE was represented at the meeting by Dr Shichuo Li (China), from the China Association Against Epilepsy. Dr Shichuo had the distinguished opportunity to present an oral statement at the meeting. DEFINITION OF EPILEPSY 2014 A Task Force of 19 members, 2 years of dedicated work, 100's of emails, 22 draft manuscripts and 313 comments public comments were involved in finalising the new operational definition of epilepsy. EPILEPSY: A chronic, life-long, non-communicable Disease Report by Mike Glynn, IBE Immediate Past President, CEO of Epilepsy Ireland and a member of the ILAE Definitions Task Force YOUNG ADULT EPILEPSY SUMMIT By: Michael Kennedy, Canadian Epilepsy Alliance For three days in July, 20 young adults ranging in age from 21 to 29 came together in Washington, DC to identify a project the group could spearhead that would improve the lives of other young adults living with epilepsy. The invitational Summit was supported by [...]

The 10th Asian & Oceanian Epilepsy Congress took place from 7th August 2014 to 10th August 2014. This edition of IE News was published specially for the Congress. In This Issue : Congress Issue (10th Asian & Oceanian Epilepsy Congress) CLICK HERE TO READ ONLINE CONQUERING EPILEPSY Book Launch and other news from India SEIZURES IN THE CITY Sherman Goh, Chief Executive, Epilepsy Care Group Singapore, writes about a special anniversary celebration at the association SANDY’S BIG DAY OUT 2014 at the beach house A report from Australia PROMISING STRATEGIES 2007 – 2014 Showcase of projects supported to date in the IBE South East Asia and Western Pacific Regions YOUNG AUSSIE TAKES UP SUDEP CHALLENGE A report by Denise Chapman, Chair Joint Epilepsy Council of Australia (JECA) OUTSTANDING PERSONS IBE honours the Outstanding Persons with Epilepsy, who will receive their awards during the 10th AOEC Opening Ceremony