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The Milken Institute Center for Strategic Philanthropy has developed this Epilepsy Giving Smarter Guide with the express purpose of empowering patients, supporters, and stakeholders to make informed, strategic decisions when directing their philanthropic investments and energy into research and development efforts. The Giving Smarter Guide provides a comprehensive lay-level overview of the disease landscape, key unmet needs, philanthropic opportunities and key stakeholders in the epilepsy field. This Guide is intended for the public and philanthropic networks. Download the Giving Smarter Guide.  

A number of personal epilepsy stories have been made available over the last two International Epilepsy Days through the official website. Now another batch of stories from North America have been added. The videos were recorded as part of the Twenty20s remarkABLE project, supported by IBE's Promising Strategies initiative. They can be found at this link: http://epilepsy.org/epilepsy-stories/

CREATING ARTISTIC WAVES! Put yourself in the frame for International Epilepsy Day, Monday, February 13, 2017... enter our competition.

Over the past few years, IE News has been included regular articles detailing the history of ILAE as documented in its newsletters. Now, as we reach the final instalment of this excellent series, produced by Ted Reynolds, a former President of ILAE, a compilation of all 10 articles is available for those who may have missed one or two instalments of this most interesting history. Download or view the 1o instalments of the Origins of the ILAE.

The Finnish Epilepsy Lifetime Achievements Award was given to professor Matti Sillanpää by Finnish Epilepsy Association, Epilepsy Research Foundation and Finnish Epilepsy Society on August 4. This Award recognises senior members of the society who have a record of lifetime contributions and accomplishments related to epilepsy research. Professor emeritus Matti Sillanpää celebrates his 80-year anniversary in Turku on August 4. His career as a pediatric neurologist, teacher and researcher is remarkable. His most important research project in epileptology is a population-based longitudinal follow-up study of children with epilepsy. He has followed the same patients at five-year intervals during 50 years. His research work has been widely cited and is well-known all over the world. Professor Sillanpää has also had time for work in both professional and lay organisations on international, national and local levels. He has acted as the President of the Finnish Epilepsy Society, Finnish Epilepsy Association and Epilepsy Research Foundation. Matti Sillanpää's work has influenced the status of people with epilepsy and improved their possibilities to lead a normal life. People with epilepsy have always been very much at his heart. He sees with great satisfaction that the attitudes towards epilepsy have improved and people with epilepsy have better [...]

When a person, or their loved one, is diagnosed with epilepsy it can be a stressful time. One of the most important things is getting the appropriate information on the brain disease and finding out how to continue everyday life despite it. A site called Living Well With Epilepsy has been fulfilling that role for the past seven years. Started by Jessica Keenan Smith from Philadelphia, the site reaches out to people dealing with epilepsy. Jessica has the brain disease herself and has lived with it for over two decades. She brings a unique perspective to Living Well With Epilepsy, as she was diagnosed as a teen after having several grand mal seizures. Using the lessons learned throughout her career in nonprofit marketing she started the site as a simple blog. The site has grown and developed based on a world-wide need for information on epilepsy. Since it’s humble beginnings, Living Well With Epilepsy has into a resource for the millions of people living with and caring for those living with epilepsy. That’s why organisations and companies involved in exciting new developments in epilepsy rely on Living Well With Epilepsy to disseminate the news through the site and social media channels. [...]

The Swaziland Epilepsy Organization has reported to us that a Consultant Clinical Neurophysiologist from the United Kingdom has offered Swaziland three EEG machines free of charge as well as TeleEEG reporting over the internet. The consultant, Dr Steve Coates, has set up EEG equipment and trained staff in Myanmar, India, Nepal, Laos and the United Kingdom. He made the offer after learning of Swaziland’s lack of these services. He will arrive, with the EEG machine and his assistant, in Swaziland on July 3, 2016 for one week. The Swaziland Epilepsy Organization, which enjoys the patronage of HRH Prince Bandzile, has thanked the IBE and ILAE for the support they gave in spreading the message about the lack of EEG machines. These developments will help in diagnosing Sawzi people with epilepsy in the appropriate manner.

The Golden Light Awards presentation was recently held in Hong Kong at the 11th Asian & Oceanian Epilepsy Congress. The awards were presented by IBE President, Athanasios Covanis and IBE Western Pacific Region Chair, Denise Chapman at the welcome ceremony of the 11th AOEC. Note: Yin Chan LOKE, Singapore could not be present to collect her award. M AMARJARGAL, Mongolia Amrita BHASHYAM, India Rosalind CHEE, Malaysia Jeong Ja JEE, South Korea Kim MEERS, Australia Wai Hung NG, Hong Kong Kabindra Man PRADHAN accepting the award on behalf of Kun Hoo RHEE, Nepal Zhi-Gang WANG, China Lauria Liu YI, Taiwan