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Harrison Ford has joined with other epilepsy advocates at an NYU event to highlight the affects of the brain disease. Ford explained that his daughter, Georgia, has epilepsy and that the Langone Medical Center’s Find a Cure for Epilepsy and Seizures (FACES) has helped his family. The actor will be a powerful new advocate for the disease which he acknowledged affects the lives, futures and opportunities of people with epilepsy.[/fusion_builder_column][/fusion_builder_row][/fusion_builder_container]

The 14th European Conference on Epilepsy & Society will take place in Prague from September 15 to 16. Registration for this event will open shortly at epilepsyandsociety.org. The conference aims to inform people with epilepsy and their families, as well as those working in the field of epilepsy about new developments in epilepsy treatment, associated cognitive dysfunction related to epilepsies and the psychosocial implications that derive from this common brain disorder and, of course, to provide solutions. Above all, this meeting will facilitate communication and exchange of ideas among people with epilepsy and professionals in the field right across Europe. The programme includes morning plenary sessions and afternoon discussion groups with as large as possible participation by delegates. Special emphasis is being placed on Posters so we would encourage you to prepare your latest work for submission.

International Epilepsy Day   Epilepsy is more than Seizures Monday 8th February 2016 Last year was the first year of the official International Epilepsy Day.  Following a successful launch with many activities around the world, we now look forward to International Epilepsy Day 2016. Already we are putting plans in place, with our Photography Competition – Yes, I can! already launched and with a closing date of 14th January. Submit a photo (or as many photos as you wish) and have the chance to win US$1,000. Find out more. The recurring theme for International Epilepsy Day – Epilepsy is more than Seizures – highlights the fact that, for many people, the stigma and discrimination faced by people with epilepsy, can be more difficult to overcome than the seizures themselves. Despite the fact at up to 70% of people with epilepsy will have their seizures successfully controlled, in the general public there is still fear and ignorance on what epilepsy really is. An international day focused on epilepsy, will help to raise awareness and educate both the general public on the true facts about epilepsy, and the urgent need for improved treatment and care, and greater investment in research. IBE and ILAE [...]

Announcing a photography competition for International Epilepsy Day 2016 Photography used to be regarded as a hobby, with cameras taken out of their cases to capture special occasions. In recent years taking a photo (or numerous photos) has become part of everyday life. With the invention of the smartphone, photos of friends and family are taken at a frightening rate. With the Selfie came the immense explosion of photo-sharing on Facebook, Instagram, Twitter and Whatsapp (to name but a few). Today, photography has never been so prolific. However, despite the ‘point and click’ ease of the smartphone, taking photographs using regular camera equipment has not disappeared. If anything, it has become even more popular. A growing number of people now are investing in expensive photographic equipment and joining classes and clubs to hone up on their skills. Flickr is their destination of choice for sharing prized images. International Epilepsy Day 2016 For International Epilepsy Day 2016, we are pleased to announce a photography competition with the theme ‘Yes, I can’, to demonstrate achievement in overcoming obstacles, or achievement despite obstacles. The best photographs will form the International Epilepsy Day exhibition, taking place in the European Parliament in Strasbourg from Monday 1st [...]

Hanneke de Boer, RIP: 1946 – 2015 It is with tremendous sadness that IBE announces the passing of Hanneke de Boer on Monday 12th October, following a long illness. Hanneke was truly one of the greatest and longest serving advocate for people with epilepsy – not only in her beloved native Netherlands, but right across the world. READ THE FULL OBITUARY HERE Sign The Book of Condolences Fill in the below form and once approved your entry will appear below. It is very sad to learn of the departure of Hanneke de Boer, which to some us too impromptu. We dearly love her but her maker loves her the  most. A strong pillar behind Global Campaign Against Epilepsy has crumbled leaving us guessing how the vacuum created could be filled. No amount of words could describe the loss the IBE and ILAE communities will be struggling with. On behalf of the Ghana Epilepsy Association and on my own personal behalf, I wish to extend our heartfelt condolences to the family of Hanneke de Boer. It is our firm belief that the Almighty God will make his face shine on her and grant her rest from all her earthly labor. Hanneke de [...]

NEUROLOGY ADVOCACY AWARDS 2015 An initiative of the European Federation of Neurological Associations Gay Mitchell receives the award for "Patient Advocacy by a European Policy-Maker" For almost 10 years, Gay Mitchell has been a consistent and dedicated campaigner for people with epilepsy in Europe, following many years providing similar support at national level in Ireland. Gay Mitchell first became involved in the work of IBE when he was asked to present at European Epilepsy & Society Congresses. At these meetings he gave insight on how the EU worked and on how national associations could make best use of the parliament. L-R Mary Harney, Former MEP Gay Mitchell Award Winner, TV Presenter Nick Ross, EFNA President Ann Little In late 2010, during a conversation on the plans of IBE to create a European Epilepsy Day, Mr Mitchell offered to host an event in the EU Parliament to celebrate the first European Epilepsy Day. In February 2011, with amazing support from him and his assistants, a lunch event with almost 30 MEPs present was followed by an Evening Reception where a further 70+ MEPs were present. The success of both of these celebrations was due in large part to Mr Mitchell. [...]

Iivanainen,   Dr Matti Jacoby,   Dr Ann Jain,   Prof Satish Jallon,   Dr Pierre Janz,   Prof Dieter Jeavons,   Dr Peter M Jetté, Dr Nathalie Jilek-Aall, Dr Louise Johannessen,   Dr Svein L Johansen,   Mr Bent Johnson,   Mrs Eva Jones,   Mr O Michael Kälviänen,   Dr R Kaneko, Prof Sunao Kanner,   Dr. Andres Kapur, Dr. Jaideep Keating,   Prof Jose Kent,   Mrs Joan Kerr,   Mr HBR Kerr, Prof Mike Kessler,   Ms Bonnie Kiffin   Penry, Dr J Kilgour,   Mrs Christina Kiorboe,   Dr E Kirker,   Dr John Koepp, Matthias Komarek,   Prof Vladimir Kramer,Dr   Gunter Kupferberg,   Prof HJ Lai,   Dr Shunglon Laidlaw,   Dr J Landolt,   Dr Hans H Lee, Dr Byung In Lee,   Mr Philip Lehtovaara,   Mr Raimo Lennox-Buchthal,   Dr M Levy,   Dr Rene Li, Prof Min Li Li,   Dr Schichuo Liao,   Prof. Weiping Lieb-Juckstock,   Mrs V Lim,   Dr S H Loeber,   Mr Joop N Loiseau,   Prof P Lombroso,   Dr Cesare T Lopes   da Silva, Dr F H Lorentz   de Haas, Dr AM Löscher,   Prof Wolfgang Lourdes   Levy, Prof [...]

Hanneke de Boer, RIP 1946 - 2015 It is with tremendous sadness that IBE announces the passing of Hanneke de Boer on Monday 12th October, following a long illness. Hanneke was truly one of the greatest and longest serving advocate for people with epilepsy – not only in her beloved native Netherlands, but right across the world. Hanneke began her professional life as a vocational consultant at Stichting Epilepsie Instellingen Nederland (SEIN) in Heemstede, the Netherlands in 1965 and would continue to work there almost to the end of her life. Her main interest was in empowering people with epilepsy to find gainful employment by working with both people with epilepsy and employers. However, hers was always the personal touch, and it was not unknown for her to provide ‘out of hours’ support to those struggling with their education courses. Hanneke first became involved with IBE when she became Editor of IE News in 1985 becoming a member of the Executive Committee. She became Secretary General in 1989 and served as President from 1993 to 1997 and Past President from 1997 to 2001. The achievement of which she was most proud was the launch of the ILAE/IBE/WHO Global Campaign Against Epilepsy ‘Out of the [...]

It is with great pleasure that IBE welcomes the acceptance of two new Chapters. The new member associations are: MOLDOVA - Full member The Association Of Supporting Children With Special Needs Visit the website of AOSCCS www.asccs.md/en ITALY - Associate member Italian Federation Epilepsies Visit the website of FIE www.fiepilessie.it This brings the number of IBE Chapters to 98 and Associate Chapters to 37. IBE is now represented in 100 countries worldwide. [divider style="shadow"] IBE Chapter Details To view the details for each IBE Chapter, please choose from the following regions below View contact details for Chapters in the African region View contact details for Chapters in the Eastern Mediterranean region View contact details for Chapters in the European region View contact details for Chapters in the Latin American regions View contact details for Chapters in the North American region View contact details for Chapters in the South East Asian region View contact details for Chapters in the Western Pacific region CLICK ON IMAGE TO TO ENLARGE

The general objective of the pan-European research project, ESBACE (European Study on the Burden and Care of Epilepsy), is to facilitate the development of high-quality epilepsy care at all stages of the disease, equitable across EU countries. ESBACE will provide data on the burden of epilepsy and on current provision and organization of care in selected EU member states. ESBACE has established a consortium of 10 centres as associate partners, with a further 9 collaborating centres to drive this project. ESBACE Objectives The specific objectives of ESBACE are as follows: Provide data on the prevalence of epilepsy in European countries Provide information on the cost of epilepsy in European countries Provide information on the stigma and quality of life of people with epilepsy Provide information on the coordination of services for patients with seizures, through an audit that ascertains patients attending emergency services Provide an update on provision and organization of epilepsy care in Europe Disseminate to health care providers and decision makers information on the burden of epilepsy in Europe, and of deficiencies as well as examples of good quality care  DOWNLOAD THE FULL ARTICLE HERE