Notice to all Members

Results of Election of Members of the International Executive Committee for the term 2013-2017   We are pleased to report the Results of the Election of Members of the International Executive Committee for the coming term 2013 - 2017 which commences 26th June 2013. To review full details of number of eligible voters, turnout and the total number of votes cast and percentage share of the ballot for each candidate CLICK HERE Elected Candidates   PRESIDENT: Athanasios Covanis, Greece             SECRETARY GENERAL: Sari Tervonen, Finland             TREASURER: Robert Cole, Australia             VP AFRICA: Anthony Zimba, Zambia              VP EASTERN MEDITERRANEAN: Najib Kissani, Morocco             VP EUROPE:  Janet Mifsud, Malta              VP LATIN AMERICA: Lilia Nuňez, Mexico             VP NORTH AMERICA: Philip Gattone, USA             VP SOUTH EAST ASIS: MM Mehndiratta, India             VP WESTERN PACIFIC: Ding Ding, China              IMMEDIATE PAST PRESIDENT: Mike Glynn, Ireland         The Election Task Force would like to [...]

2017-02-18T11:52:20+00:00September 17th, 2012|

Promising Strategies Introduction

Background The International Bureau for Epilepsy (IBE) is committed to finding new and innovative solutions to the problems impacting people with epilepsy and their families world-wide. As part of this commitment, IBE is providing a limited amount of financial support to IBE member organizations on a competitive basis for initiatives aimed at improving the quality of life for people with epilepsy in developing nations. Definition of a Promising Strategy A Promising Strategy is one that has the potential to foster effective and innovative public health practice with regard to epilepsy. Ideally, a Promising Strategy contains many of the following: Is based on measurable, realistic, and time specific objectives Is need-based and data-driven Is innovative and represents the development of new solutions to common problems impacting people with epilepsy and their families Establishes a strategy that makes a difference in improving accessibility to accurate, timely, necessary and culturally appropriate information and/or services Demonstrates a sustainable effect in the community where it is being implemented Has the potential for replication of positive results if the program is implemented in a similar environment with a similar target population as its original pilot demonstration Is a strategy that can be used to generate policies and [...]

2017-02-18T11:51:17+00:00July 25th, 2012|

Epilepsy in Bangladesh

It is estimated that there are at least 1.5 to 2.0 million epilepsy patients in Bangladesh. Epidemiological study was conducted at Epilepsy Clinic, Neurology foundation Hospital, Dhaka, Bangladesh, and a total of 2200 patients were included. Causes for treatment failure include improper compliance, Incorrect diagnosis, Inappropriate drug, dose & duration, and lastly Refractory epilepsy. Causes for non compliance N 428 (20%) include Non-affordability of drugs , Unavailability of drugs , inadequate Knowledge and attitude, Lack of counseling, Adverse effects of drug, Social factors. Conclusions Epilepsy is a common health problem in Bangladesh. 30-40% of patients are still treated by traditional healer. Superstitious belief is a stigmata in the community. The most common cause of non compliance is cost of drug. 50-60% patients remain symptoms free with 4 common drugs. Recommendations Community awareness is needed to reduce the burden of the disease. Training of GP & internist is necessary for appropriate approach. National guideline for treatment of epilepsy is needed. Community based clinic needed to treat the epileptic patient in rural areas.

2016-04-28T23:26:52+00:00December 15th, 2011|

Informe sobre la Epilepsia en Latinoamérica

Clíc aquí para descargar el Informe sobre la Epilepsia en Latinoamérica Este informe es un documento técnico sobre la situación de la epilepsia a nivel regional de las Américas, que fue promovido por la Organización Panamericana de la Salud, el Departamento de Salud Mental y Abuso de Sustancias de la Organización Mundial de la Salud (OMS), la Liga Internacional Contra la Epilepsia (ILAE) y el Buró Internacional para la Epilepsia (IBE). El informe fue coordinado por el Dr. Carlos Acevedo. La revisión técnica fue realizada por el Dr. Víctor Aparicio Basauri, asesor subregional de salud mental, para Centroamérica, Caribe hispano, México (OPS/OMS). La edición fue promovida por el proyecto de salud mental, discapacidad y rehabilitación de la Organización Panamericana de la Salud/Organización Mundial de la Salud y el Departamento de Salud Mental y Abuso de Sustancias de la Organización Mundial de la Salud . Clíc aquí para descargar el Informe sobre la Epilepsia en Latinoamérica

2017-02-18T11:51:13+00:00November 30th, 2011|

Epilepsy in the Eastern Mediterranean Region – Bridging the gap

Click here to download this report. Epilepsy is one of the most common neurological disorders and knows no geographical, racial or social boundaries. It can begin at any age, but is most frequently diagnosed in children, adolescents and the elderly. Epilepsy provides the finest example of a neurological disorder for which cost-effective treatment is available. Up to 70% of people with this condition could live productive and fulfilling lives, free from seizures, if appropriately diagnosed and treated. Yet epilepsy continues to take a heavy toll on those who suffer from the condition. The cost of epilepsy is by no means restricted to the individuals suffering from the condition but also extends to their families. The costs are not only the direct costs of providing care and services but also indirect costs in terms of lost opportunities and productivity. Furthermore the imperceptible costs of stigma and discrimination add immeasurably to the physical, psychological, social and economic consequences of individuals and their families. One of the common consequences of discrimination and the associated stigma, is that patients and their families do not seek treatment even when it is available, accessible and affordable. Since its launch in 1997 by ILAE, IBE and WHO, the [...]

2017-02-18T11:51:11+00:00November 30th, 2011|

African Region: Bridging the gap

Click here to download this report. Epilepsy is responsible for an enormous amount of suffering. On the African continent it affects 10.000.000 people directly. They are of all ages, but especially within childhood, adolescence and the ageing population. Epilepsy provides the clearest example of a neurological disorder for which effective and costefficient treatment is available. Recent studies both in the developing and in the developed world revealed that if properly treated up to 70% of people with this condition could live productive and fulfilling lives, free from seizures. Yet in developing countries up to 90% of the people who have this condition, and sometimes even more, are excluded from care and consequently remain in the shadow of this treatment gap. One of the reasons for this is that in many parts of the world there is a grave social stigma attached to epilepsy. People believe that epilepsy is contagious and hesitate to help or touch the person who has fallen during a seizure. The stigma of epilepsy also has a great influence on the education of children and young people. The solutions to these problems are too complex to be solved by individual organizations. Therefore the three most important international organizations [...]

2017-02-18T11:51:06+00:00November 30th, 2011|

Epilepsy in the Western Pacific Region: Call to Action

Click here to download this report. The burden of epilepsy in the Western Pacific Region of WHO is as extensive and serious as in any other region of the world. Epidemiological surveys in several countries have shown high incidence and prevalence of epilepsy, with high associated disability and high rates of serious complications, including physical injury and premature mortality. Studies have also demonstrated that most people with epilepsy do not receive appropriate treatment. The “treatment gap” in less developed countries is an estimated 70% to 95%. Safe, effective and inexpensive medication exists that can control seizures in most people with epilepsy but a range of cultural, economic and other factors can prevent them from receiving the treatment they need. In 2001, three initiatives came together, marking an unprecedented opportunity to remedy this situation in the Western Pacific Region. These were: (1) continued implementation of the Global Campaign Against Epilepsy (GCAE), launched in 1997; (2) the adoption of epilepsy as a priority in the Regional Strategy for Mental Health which was endorsed by the 52nd Regional Committee of the Western Pacific Region in Brunei Darussalam in September 2001; and (3) the inclusion of epilepsy as a priority condition in the World Health [...]

2017-02-18T11:51:04+00:00November 30th, 2011|

Epilepsy in the WHO South East Asian Region – Bridging the gap

Click here to download this report. Epilepsy affects about 1% of the population of the South-East Asia Region of WHO thus there are approximately 15 million people with epilepsy in the Region. Despite global advances in modern medicine, epilepsy continues to be surrounded by myths and misconceptions. Patients with epilepsy may be taken to faith healers rather than medical doctors, and only 10-20% of all patients with epilepsy receive appropriate treatment. People with epilepsy and their families have suffered ostracism by society and deprived of treatment, leading to frequent injuries and sometimes, death. The situation is particularly bad in rural and remote areas where almost no services for epilepsy are available. However, as we take courage from the fact that 70 to 80% of people with epilepsy can lead normal lives if properly treated, it is time to introspect as to why 80 to 90% of people with epilepsy are not being treated at all. We must find answers and take appropriate action now. In cooperation with the governments of Member Countries, SEARO hopes to launch nationwide projects in each country to reduce the treatment gap in epilepsy. To carry forward this ambitious project, SEARO recognizes that the support of multiple [...]

2017-02-18T11:51:02+00:00November 30th, 2011|

Epilepsy in the WHO – Fostering Epilepsy Care in Europe

Click here to download this report. In Europe, at least 6 million people have epilepsy, and 15 million Europeans will have one seizure at some time in their lives. Nevertheless, in some countries of Europe, epilepsy is not recognized as a brain disorder, and up to 40% of people with this condition may be untreated – the treatment gap. Epilepsy is a treatable condition and relatively cheap medication is available. Professionals who treat people with epilepsy, however, often do not have sufficient specialized knowledge of the condition, and, in some countries, antiepileptic drugs are not always available or are not affordable and diagnostic facilities are lacking or are inadequate. It has been estimated that the 6 million people with active epilepsy in Europe cost over € 20 billion per year, and despite this, very few European countries have national plans for managing the disorder. Epilepsy continues to take its toll, impairing the physical, psychological and social functioning of those affected and equally causes serious psychological, social and economic consequences for their families. People with epilepsy, and sometimes their family members, are often stigmatized, generating a hidden burden which discourages them from seeking the diagnosis and care they require. Stigma leads to [...]

2017-02-18T11:51:00+00:00November 30th, 2011|

EU Written Declaration on Epilepsy Receives Strong Support

Declaration No 22-2011 Submitted by Gay Mitchell, Nirj Deva, Marian Harkin, Peter Skinner, Angelika WerthmannThe European Union (EU) Written Declaration on Epilepsy is receiving very good support from Members of the European Parliament (MEPs) from throughout Europe. The declaration first opened for signatures during the plenary session in Strasbourg in May, when a total of 107 MEPs added their signatures to the book.During the second opportunity for signing, in early June, a further 138 MEPs signed the declaration, bringing the total to 245 signatures. On the 22nd/23rd June a short mini-session in Brussels brought a further 30 further signatures. So, at the end of June 2011, 275 MEPs have signed the declaration demonstrating their support for people with epilepsy in Europe.In order to have the EU Written Declaration on Epilepsy carried in the European Parliment, we need to receive a minimum of 369 signatures (a majority of all MEPs).Listed below are the names of the MEPs who have signed during the May and June sessions. IBE, the International League Against Epilepsy (ILAE) and the European Advocates for Epilepsy Group (which is chaired by Gay Mitchell MEP) are extremely grateful to those MEPs who have already put their names to the declaration.The [...]

2017-02-18T11:50:49+00:00June 14th, 2011|
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