News

We are delighted to announce that the International Bureau for Epilepsy (IBE) has joined the OneNeurology Partnership. This exciting partnership brings together leading organizations in the field of neurology to work towards a common goal of improving the lives of people with neurological conditions. The Partnership, composed of international neurological organisations and regional umbrella groups, are uniting to make neurology a global public health priority. It is a multi-stakeholder, patient-focused partnership which aims to strengthen neurology-related groups to stimulate collaborative advocacy, action and accountability for the prevention, treatment and management of neurological disorders worldwide. Speaking about the decision to join the OneNeurology Partnership, IBE CEO Donna Walsh said: “At the International Bureau for Epilepsy, we are firm believers in the value of collaborative advocacy actions across the field of neurology and brain health. Via the OneNeurology Partnership, we hope that we can leverage synergies, share learnings and best practices, and work together on common challenges and opportunities. As the global voice of people with epilepsy, we are honoured to join like-minded organisations as part of this global, patient-focused initiative; teaming up to make neurology a public health priority everywhere!” Other members of the Partnership include organisations such as Alzheimer’s Disease International, [...]

A newly launched European project called EpilepsyPOWER aims to ensure people with epilepsy are not marginalized in the workplace. Tools and training will be developed for businesses and academic institutions to create and implement epilepsy inclusion systems. Two surveys have been created to shape the development of these tools. Results from the survey will help identify epilepsy knowledge, attitudes, and practices. This will enable the project team to create targeted solutions that shift attitudes and cultures toward people with epilepsy. The questionnaires are available in 6 languages: English, French, Italian, German and Bulgarian. The first questionnaire is aimed at people with epilepsy. The second survey is targeted at representatives of higher education institutions. Spread the word and take the survey. Surveys are anonymous and confidential. Responses are due February 18th, 2023. For more on the EpilepsyPOWER project, visit: English (epilepsypower-project.eu) Take Survey

The World Health Organisation has launched an epilepsy technical brief to strengthen action for epilepsy. This brief is a technical complement to the Intersectoral Global Action Plan on epilepsy and other neurological disorders 2022–2031. It presents the key information on epilepsy and recommends actions to policymakers and other stakeholders which should strengthen services for people with epilepsy, and result in an improvement in quality of life. The brief takes a person-centered approach based on human rights and universal health coverage. The document can be downloaded at the link below. Download

We are pleased to share news from A.E. (Associazione Epilessia) about the publication of Tempestina e le gironiche, a book that tells the story of how a child's first seizures and epilepsy diagnosis disrupted everyday life and forced the whole family to adjust. This book is useful for understanding how to explain to a child that epilepsy is a serious condition that must be faced with courage and without shame. Life can be upset by epilepsy, but it shouldn't be hidden, it's actually meant to be shared, to feel less alone, less vulnerable, and less different. Despite its simplicity, this book tells the truth about the condition and sows the seeds of a great transformation in regard to epilepsy for this very reason. As a result, we are able to move from fear to cure together. Siamo lieti di condividere la notizia di A.E. (Associazione Epilessia) sulla pubblicazione di Tempestina e le gironiche, un libro che racconta la storia di come le prime crisi epilettiche e la diagnosi di epilessia di un bambino hanno sconvolto la vita di tutti i giorni e costretto tutta la famiglia ad adattarsi. Questo libro è utile per capire come spiegare ad un bambino che l'epilessia [...]

Did you know that the World Health Organisation has launched a 10-year Global Action Plan on Epilepsy and other Neurological Disorders (IGAP)? The IGAP will focus on strengthening the public health approach to epilepsy around the world, with a focus on ensuring access to care and protecting the human rights of people with epilepsy everywhere. At this year’s Asian and Oceanian Epilepsy Congress, we will hear from health care professionals, researchers, policymakers, people with epilepsy and their representatives to discuss how the IGAP can be implemented in the region and the impact that is expected. This will be an important opportunity to learn more about the IGAP and to discuss - together - how we can implement actions in your region to close the treatment and inclusion gaps. This congress is an important event for the region, and we want to ensure that the voice of people with epilepsy is heard throughout. Registration, at a discounted rate for patient advocates, to attend the Congress is now open. There is no cost to attend the IBE Epilepsy and Society Symposium - but registration is required. You can register using the link below. Please note that we have also extended the deadline [...]

We are delighted to announce a call for entries for the art exhibition at AOEC on the theme of "Stigma." The call is open to everyone of any age, including people with epilepsy and their carers, doctors, nurses, social workers, etc. All entries will be included in the online art exhibition as an image gallery featured as part of the virtual 14th AOEC. Entries will automatically go forward to a global competition to mark International Epilepsy Day, which takes place on February 13th, 2023. The theme of International Epilepsy Day 2023 will also focus on the theme of stigma. We look forward to receiving your submissions! Please read entry rules and use the form below to submit your entry. Closing date for entries is Friday, 4th November, 2022. If you have difficulty submitting via the online form below click here to download the entry form. Entry Rules Brain On Fire: Stigma (Sarah Brown) Join us on Saturday, 19th November, for the IBE Epilepsy & Society Symposium as part of the 14th Asian and Oceanian Epilepsy Congress programme.