In this edition of IBE’s ‘Meet the Chapter’ series we are introduced to the Mauritius-based Edycs Epilepsy Group.
Edycs Epilepsy Group is the leading, voluntary non-governmental organisation founded on 24 December 1997 by a group of volunteers, patients and health professionals, whose aims are to assist people with epilepsy through advocacy in accessing quality health care, provision of free medication, diagnosis assistance, training in epilepsy care, campaigning for changes in attitudes and behaviors – just some issues Edycs Epilepsy Group addresses everyday in the Republic of Mauritius.
Our Mission
The mission of Edycs Epilepsy Group is to promote lifelong access and opportunities to people who have epilepsy and their families, to become fully included and participating members in the community.
Our Key Objectives
- Promote epilepsy awareness and understanding in the Republic of Mauritius including Rodrigues islands
- Promote epilepsy health care services via Edycs Epilepsy Health Service Centers Mauritius and Rodrigues islands
- Provide inclusive education for children with epilepsy via Edycs Help to Grow SENS Schools in Mauritius and Rodrigues
- Work in close collaboration with stakeholders in particular Government bodies, Corporate Sector and Civil Society at large
- Develop a mid- and long-term Strategic Plan to address epilepsy
- Network with key local, regional and international players in epilepsy
- Mobilize resources for the attainment of the above key objectives
Major Achievements
The ARADI Project
The ARADI (Alliance for Rights – Africa towards Disability Inclusion) is a continental disability oriented strategy that is aimed at supporting CSOs participation and contribution to the African continental decision, policy making and standard setting. This project is funded by the European Union and CBM to enable 13 Pan-African Disability Federations (PADFs) and 14 Youth CSO to promote the importance of Disability Rights using AU’s Africa Disability Protocol (ADP) and the Model Disability Law (MDL). Edycs Epilepsy Group is a national non-governmental organisation working to support persons with epilepsy in the Republic of Mauritius and its Outer Islands. Edycs Epilepsy Group is a sub-grantee of the ARADI project. The project started in November 2017 and is still ongoing.
Please find additional information here
Project: Promotion of Disability Employment Rights in Persons with Epilepsy (PWE) & Seizure Disorder Management School Protocol
Edycs Epilepsy Group, with funding from the National CSR Foundation is currently implementing the project: Promotion of Disability Employment Rights in Persons with Epilepsy & Seizure Disorder Management School Protocol in the Republic of Mauritius including Rodrigues Island. The objective behind this initiative is to look into the inclusiveness of persons with epilepsy in the employment sphere and to empower educators to be equipped with relevant skills and know-how in dealing with seizures in classrooms.
Please find additional information pertaining to the first workshop on employment here
More information:
The website design of Edycs Epilepsy Group is under process and will be completed by end of May 2019.
Email: [email protected]
