Exploring Epilepsy and the Family
A Report from the Global Youth Team of the International Bureau for Epilepsy [IBE] on International Day of Families 2023.
For young people with epilepsy, the role of family is crucial to support their development and allow them to reach their true potential. Ahead of the UN International Day of Families, the IBE Global Youth Team asked their families about their experiences supporting loved ones with epilepsy. Youth Team members then produced a report outlining their findings and making some important recommendations for the epilepsy community and beyond.
We invite you to download this article and get in touch with your own work or research on this topic, or any experiences, comments or reflections on this work (engagement@ibe-epilepsy.org).
The IBE Youth Team connects young people with epilepsy around the world, develops young epilepsy advocates and enables them to partner with those working across epilepsy research, healthcare and policy making. The Youth Team meets monthly to discuss and shape the IBE Youth Programme.