The International Bureau for Epilepsy’s (IBE) Global Epilepsy Needs Survey (GENS) is your chance to speak up and make a real difference.
After a successful launch across 15 countries, GENS is now open to everyone with epilepsy (18+) and their caregivers worldwide. This is your opportunity to shape the future of epilepsy care and inspire change on a global scale.
Why Your Voice Matters
Your unique experiences and needs will illuminate the biggest unmet needs in your country, and contribute to a groundbreaking global study. Your answers will inform solutions that work best for you and your family, and shape information and support programs worldwide.
Your insights will help:
- Build on existing knowledge: Provide a more comprehensive picture of the true needs of individuals with epilepsy and their caregivers, beyond medical needs.
- Guide Global Action: Inform the development of effective policies, research, and healthcare programmes tailored to your needs.
- Empower Local Change: Provide your country’s IBE chapter with the evidence they need to advocate for change at the national level.
Take the GENS survey today and help shape a world where epilepsy is better understood and supported.
The survey closes on October 20th and is available in multiple languages, including English, French, Spanish, Portuguese, Arabic, Hindi, and Chinese.
Be the change. Share your story. Make a difference.
