IBE Day at the 34th International Epilepsy Congress
Wednesday 1st September 2021
Time: 07:00 EST, 13:00 CET/CAT, 16:30 IST, 19:00 CST, 21:00 AEST
If you are unsure about the start time for where you live, contact us at annlittle@ibe-epilepsy.org for help.
PROGRAMME
1. Making Epilepsy a National Health Priority – intersectoral collaboration
Chairs: Mary Secco, IBE Secretary General and Action Amos, IBE Vice President Africa
Topics and speakers:
- 10-year intersectoral global action plan on epilepsy and other neurological disorders (IGAP)
Tarun Dua, WHO Brain Health Unit - Improving care for children with neurological disorders in resource poor settings
Jo Wilmshurst, President International Childhood Neurology Association - Improving access to essential medicines
Gaby Ooms, Health Action International - Putting epilepsy on social policy and development agendas
John O’Toole, Division for Inclusive Development, UN Dept of Economic & Social Affairs - Leveraging the IGAP to improve care for people with epilepsy
Alla Guekht, Chair ILAE Global Advocacy Council - Working with donors
Gardiner Lapham, Trustee BAND Foundation - Epilepsy Advocates Toolkit
Karen Robinson, Epilepsy South Africa - Global health in epilepsy database
Karen Parko, ILAE North America
2. Empowering Youth to Raise their Voices
Chairs: Lorraine Lally (Ireland) and Scarlett Paige (Australia), co-chairs of the IBE Youth Team
Topics and speakers:
- Epilepsy & Pregnancy: launching IBE’s new toolkit
Lorraine Lally and Gus Baker, Chair Epilepsy & Pregnancy Campaign and Secretary General-elect - Meet the International Golden Light Award Winners 2021
Presentation of 19 awardees - Hear my Story
International Golden Lights, from IBE’s seven regions, share their personal stories:- African region: tbc
- Eastern Mediterranean: Mohsen Fariborzi (Iran)
- Europe: Lynna Held (Germany)
- Latin America: Luiza Gatto (Brazil)
- North America: Cassidy Megan (Canada)
- South East Asia: Vinay Jani (India)
- Western Pacific: Meng-Leo Chou (Taiwan China)
- Introduction to the IBE Global Youth Team
Lorraine Lally and Scarlett Paige - Questions and Answers session
3. Psychologic treatment and self-management of epilepsy
Chair: Gus Baker (UK)
Topics and speakers:
- The comorbidities of epilepsy: a review
Gus Baker (Chair, IBE Research Team and Secretary-General-elect) - The psychological management of epilepsy: The Turkish experience
Nuran Aydemir (Turkey), Co-chair IBE Research Team - Self-management programmes in children: The Scottish experience
Liam Dorris (Scotland) - Psychological treatment of epilepsy: The Mauritian experience
Devishada Dassyne (Mauritius) - Self-management programmes: The US Experience
Rosemary Kobau (USA)
REGISTRATION IS FREE BUT YOU MUST REGISTER TO ATTEND
