Latest News
Issue 4 – 2007
Issue 4 – 2007 gives details of the six projects that have been selected to receive support under the Promising Strategies Program for 2008. Furthermore, there are reports on the International Executive Committee meeting held in Brussels, together with updates from several regional committees including Africa, [...]
Employing People with Epilepsy – Principles for Good Practice
Employing People with Epilepsy – Principles for Good Practice is published by the International Bureau for Epilepsy. This leaflet is a useful guide for employers and all professionals who are involved with the employment of persons with epilepsy and sets out the principles developed by the [...]
History
1997-2001 President: Mr. P. Lee, England (from August 1999) Mr. R. Holmes, Ireland (until August 1999) Past-President: Mrs. H.M. de Boer, the Netherlands Treasurer: Mr. J.K. Falk-Pedersen, Norway Secretary General: Dr. M.D. Hills, New Zealand Vice-Presidents: Mrs. J. Cochrane, Scotland Prof E. Cavalheiro, Brazil Dr. C.C. [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
