Latest News
Announcing Call For Art Entries For IBE Epilepsy & Society Virtual Symposium during 14th AOEC Congress
We are delighted to announce a call for entries for the art exhibition at AOEC on the theme of "Stigma." The call is open to everyone of any age, including people with epilepsy and their carers, doctors, nurses, social workers, etc. All entries will be [...]
Advocate’s Toolkit for Reducing Epilepsy Stigma in Africa
Dear Friends, This toolkit is a milestone in IBE’s commitment to empower people with epilepsy. It recognises that stigma is a major barrier preventing social inclusion and access to health care and treatment for people with epilepsy. The stigma surrounding epilepsy takes many forms and [...]
Demystifying and Destigmatizing Epilepsy For Over 7000 Educators In Mumbai
Samman Association has been working to empower people with epilepsy for over 50 years and raising epilepsy awareness is one of its main goals. The Mumbai Chapter (now known as Samman Association) started epilepsy education for school teachers soon after its inception in 1972, a need [...]
Join us for the IBE Epilepsy & Society Virtual Symposium during 14th AOEC Congress
Did you know, that the World Health Organisation has launched a 10-year Global Action Plan on Epilepsy and other Neurological Disorders? This plan will focus on strengthening the public health approach to epilepsy around the world, with a focus on ensuring access to care and [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
