Latest News
A step closer to a Global Action Plan on Epilepsy
IBE applauds the final draft of the 10 year intersectoral global action plan on epilepsy and other neurological disorders. The draft - available here - will now be discussed at a meeting of the Executive Board of the World Health Organisation. IBE encourages its chapters and [...]
International Epilepsy Day – Share a little love!
International Epilepsy Day AND Valentine's Day! Monday, February 14, 2022 In 2022 International Epilepsy Day will takes place on Monday, February 14 - a day celebrated in many parts of the world as Valentine's Day! Valentine's Day is a day when it is traditional to [...]
50 Million Steps for Epilepsy – 2022 Campaign
The #50MillionSteps campaign is back!The 50 Million Steps for Epilepsy campaign launched in 2021, with great success. Our target of seeing a step taken for each person living with epilepsy in the world was smashed, with almost 165,000,000 steps achieved!Let's take our awareness raising even further [...]
Women and Epilepsy – A new website from IBE
Having a baby is an exciting time, full of wonderment, anticipation and joy. But for women with epilepsy, becoming pregnant and having a baby is a little more complicated. For this reason, the International Bureau for Epilepsy (IBE) has developed a new website - womenandepilepsy.org - [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
