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International Epilepsy News – Issue 4, 2021
After 25 years working at IBE and 15 years as Editor of IE News, this is a sad moment for me as I pen this, my final message to you as IBE Executive Director and IE News Editor. All good things must come to an end [...]
The International Bureau for Epilepsy is HIRING!
After an inspiring period of strategic planning, the International Bureau for Epilepsy is recruiting for two newly created positions: Head of Communications and Engagement (Click for further info) Head of Policy and Research (Click for further info) With a growing network of almost 150 chapters in [...]
IBE Annual Report 2020
Read the Annual Report
Introducing Donna Walsh, Incoming IBE Chief Executive Officer (CEO)
Dear Friends, I am pleased to announce that IBE has appointed Donna Walsh as Incoming IBE CEO who will take over from our Executive Director, Ann Little, who is retiring on 31st December 2021. Donna joins IBE from the European Federation of Neurological Associations (EFNA), where [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
