Latest News
International Epilepsy News – Issue 3, 2021
Welcome to a bumper issue of IE News! Running to 37 pages, the magazine is almost twice the size of a regular issue and is bursting with reports and articles of interest to all. We begin with the final President’s Letter, with Martin Brodie looking back [...]
Report from the Roundtable on the Intersectoral Global Action Plan for Epilepsy and Other Neurological Disorders
Download this report in .pdf format On 16 July 2021, ILAE and IBE hosted a virtual roundtable discussion with over 160 participants from 50 countries including representatives from Ministries of Health, Education and Employment to Inspire a Decade of Action guided by the Intersectoral Global Action [...]
Employment Opportunity at IBE
Due to the retirement of its Executive Director in December 2021, IBE invites applications from suitably qualified candidates to be considered for the position of incoming Executive Director. The role involves the provision of overall guidance and support to the leadership of IBE and the provision [...]
Epilepsy and Pregnancy – Survey report
While the majority of women with epilepsy will have successful pregnancies, it is vital that women of childbearing age are fully informed on all issues relating to epilepsy and pregnancy. Given that up to 50% of pregnancies are unplanned, it is important for women that [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
