Latest News
International Golden Light Award Winners 2021
Golden Lights at the 34th International Epilepsy Congress The IBE Golden Light Awards are an opportunity to recognise and reward young people affected by epilepsy - either because they have epilepsy or have made a significant positive impact on the lives of others who have [...]
IBE Africa Annual Report 2020
Greetings to all; As the Vice President of IBE Africa we want to thank you all for your continued support that you give our team as the African Regional Executive Committee as well as persons with epilepsy. Although in 2020 we were threatened by COVID-19, [...]
IBE Africa Report on the 21 States
WHA Resolutions 68.20 and 73.10 implore all UN Member States to address epilepsy as a public health imperative by developing and implementing global and national action plans on epilepsy. Further, UN Member States are encouraged to reinforce human rights based policies and laws for people [...]
Register for IBE Day at the 34th International Epilepsy Congress
IBE Day at the 34th International Epilepsy Congress Wednesday 1st September 2021 Time: 07:00 EST, 13:00 CET/CAT, 16:30 IST, 19:00 CST, 21:00 AEST If you are unsure about the start time for where you live, contact us at [email protected] for help. PROGRAMME 1. Making Epilepsy [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
