Latest News
Beautifully illustrated Spanish children’s story Spanish published to improve understanding of epilepsy
'El Mar de los Mil Nombres' ('The Sea of a Thousand Names'), is a new children's story, written by Antonio de Benito and illustrated by Teresa Fudio Delgado. The story is aimed at children with epilepsy and their families. It has been released by the Spanish [...]
International Epilepsy News – Issue 2, 2021
In this issue we include a very interesting report on photosensitive epilepsy, written by Dorothée Kasteleijn-Nolst, who has worked in the field of photosensitive epilepsy for more than 30 years. It’s a fascinating report and brings us up to date withthe latest developments in screens, computer [...]
Asian & Oceanian Golden Light Award Winners 2021
Golden Lights at the 13th Asian & Oceanian Epilepsy Congress The IBE Golden Light Awards are an opportunity to recognise and reward young people affected by epilepsy - either because they have epilepsy or have made a significant positive impact on the lives of others who [...]
Introducing Deirdre Floyd – Vice President, IBE North American Region
Following the close of the election nomination period, we would like to introduce the incoming Vice President North American Region, Deirdre Floyd. Deirdre will complete the current term of IBE Regional Vice Presidents, which will come to a close at the time of the IBE General [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
