Latest News
Launch of the Advocate’s Toolkit to Make Epilepsy a Priority in the Americas
Next Thursday, September 5, 2024, the official launch of the "Advocate's Toolkit to Make Epilepsy a Priority in the Americas" will take place during a special webinar event. This important resource has been co-developed by the International Bureau for Epilepsy (IBE) and the Pan American Health [...]
WHO Launches Implementation Toolkit for IGAP
WHO has today published a new implementation toolkit for the Intersectoral global action plan on epilepsy and other neurological disorders (IGAP), outlining specific actions and resources for countries to improve services for people with neurological disorders in preparation for meeting IGAP’s targets for 2031. Neurological conditions [...]
IBE Events and Activities at LAEC 2024
The International Bureau for Epilepsy (IBE) is planning some exciting activities at the 13th Latin American Epilepsy Congress in collaboration with ILAE, which takes place from 15th to 18th June 2024 in Santo Domingo, Dominican Republic. We’re very excited about the upcoming Latin American Epilepsy [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
