Latest News
Join us for the IBE Epilepsy & Society Symposium during 13th AOEC Congress
Join us on Sunday, 13th June, for the IBE Epilepsy & Society Symposium as part of the 13th AOEC congress programme! The all-day programme is a great opportunity for people with #epilepsy and their care providers to take part in a day of interactive discussion with [...]
Call for nominations to the IBE Golden Light Awards 2021
A Golden Opportunity to recognise and award a young person affected by epilepsy in your Chapter Is there a young member of your association who is affected by epilepsy or cares for someone with epilepsy, who has been a “shining light” for others and is deserving [...]
Art Exhibition at the 13th Asian & Oceanian Epilepsy Congress
Announcing an Art Exhibition taking place at the 13th Asian & Oceanian Epilepsy Congress An invitation is being extended to submit artwork to be exhibited at the time of the 13th Asian & Oceanian Epilepsy Congress in June. Below you will find details of the exhibition [...]
International Epilepsy Day 2021 Report
Read the Report
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
