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IBE Annual Report 2019
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Fred Beuchi’s Kilimanjaro challenge
To achieve our 50 Million Steps for Epilepsy challenge doesn’t require that you climb a mountain. Yet, that is exactly what Fred Beuchi and his team are doing right now as a prequel to the official start of the 50 Million Steps challenge on 4th January. [...]
Briefing Document on update of Psychosocial Research
Dear friends, colleagues and members of IBE, As promised, here is our 2nd briefing document on recently published research which we hope will be of interest to the IBE Membership. Key topics will continue to include: Self-management including education and knowledge; and the application of self-help [...]
50 Million Steps for Epilepsy – Are you ready to walk with us?
New campaign launched by the IBE ahead of International Epilepsy Day 2021 50 million people worldwide are affected by epilepsy according to WHO/OMS official figures. There are many different causes for epilepsy including genetic disposition, head trauma or brain tumour. For some, the cause is unknown. [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
