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Petition from African Youths with Epilepsy
PETITION FROM AFRICAN YOUTHS WITH EPILEPSY & THEIR FRIENDS TO: MINISTERS OF HEALTH & PARLIAMENTARY COMMITTEES OF HEALTH ACROSS AFRICA 20th October, 2020 Download the petition in English Download the petition in French Download the petition in Portuguese We the youths with epilepsy from Africa and [...]
Former President of Malawi calls for support of WHA Resolution on Epilepsy and Other Neurological Disorders
Former President of Malawi, Dr. Joyce Banda, encourages people to support the World Health Assembly Resolution 68.20 on Global Action on Epilepsy and Its Synergies with Other Neurological Disorders during the 73rd World Health Assembly. The WHA68.20 resolution urges Member States to address the global burden [...]
Let’s shine a light for epilepsy!
International Epilepsy Day 2021 will take place on Monday, February 8. This is a powerful opportunity to highlight the problems faced by people affected by epilepsy, their families and carers, in every region of the world. A highlight of International Epilepsy Day 2020 was seeing a [...]
IBE Africa Region – Webinar invitation
Making Epilepsy a Health Priority in Africa - WHA Resolutions 68:20 Youths with Epilepsy across Africa Speak Out! Join us for our monthly Webinar series! Date: 20th October, 2020 Time: 2:00pm Nairobi time - 1:00pm Pretoria time Moderator: Action Amos, Vice President Africa, International Bureau for [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
