Latest News
Epilepsy Africa News – Issue 25
Chairperson & Editor’s message Dear Reader, Welcome to the 25th edition of Epilepsy Africa News. Epilepsy Africa News is a platform whereby persons with epilepsy, Epilepsy Organisations and Individuals are sharing their views on issues on epilepsy. This edition is covering news for the Month of [...]
Anthony Mulenga Zimba – Book of Condolence
It is with great sadness that IBE learned of the death of its esteemed Treasurer, Anthony Mulenga Zimba. Anthony had a long history of service to IBE, having served on the African Regional Committee from 2005 to 2009 and on its International Executive Committee for the [...]
Celebrating 20 years of Latin American Epilepsy Day
Celebrando 20 años... Día Latinoamericano de la Epilepsia - 9 de Septiembre 2020 Latin American Epilepsy Day is held each year on September 9th. This year is the 20th anniversary of the occasion. Join us in marking the day!
International Epilepsy News – Issue 3, 2020
The cover of this issue features a wonderful portrait photo of the late Anthony Zimba, IBE’s Treasurer, who sadly died from Covid-19 in early August. His obituary and an extract from an interview he did with Fraser Morton are published in this issue. The photo was [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
