Latest News
Notice to all IBE Chapters with Voting Rights
Election of the President of the International Executive Committee for the term 2021-2025 The ballot for this election will take place by post/email between 16th October and 30th November 2020. In advance of balloting, IBE chapters with voting rights are hereby invited to nominate a candidate [...]
IBE Global Teams – An invitation to find out more!
IBE Topic Focused Global Teams – an Introduction IBE’s Strategic Plan recognises the importance of engaging people with epilepsy and their care providers in all our decision making. Involving these stakeholders in all our activities is vital if they are to become the motivators of tomorrow. [...]
Anthony Mulenga Zimba, RIP
It is with great sadness that IBE announces the death of its esteemed Treasurer, Anthony Mulenga Zimba. A victim of Covid-19, Anthony passed away in hospital in Lusaka, Zambia, on the morning of Sunday 9th August. Anthony had a long history of service to IBE, having [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
