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IBE Events and Activities at LAEC 2024
The International Bureau for Epilepsy (IBE) is planning some exciting activities at the 13th Latin American Epilepsy Congress in collaboration with ILAE, which takes place from 15th to 18th June 2024 in Santo Domingo, Dominican Republic. We’re very excited about the upcoming Latin American Epilepsy [...]
What Matters To Young People With Epilepsy? Insights From the Global Youth Summit 2023 Report
The International Bureau for Epilepsy (IBE), in collaboration with Epilepsy Ireland, Young Epilepsy (UK), and Epilepsy Connections (Scotland, UK), brought 27 young people with epilepsy together in Dublin, Ireland, for a Global Youth Summit as part of the 35th International Epilepsy Congress. The summit took [...]
ILAE-IBE Joint Statement on International Epilepsy Day 2024
Today, on International Epilepsy Day, the International League Against Epilepsy (ILAE) and the International Bureau for Epilepsy (IBE) are calling for accelerated implementation of the Intersectoral Global Action Plan on Epilepsy and other Neurological Disorders. This plan, or IGAP, developed by the World Health [...]
New African Language Translations of IGAP
Epilepsy South Africa recently announced a significant milestone in its commitment to inclusivity and accessibility. Thanks to the dedicated efforts of the Epilepsy South Africa team, branches, and IGAP Champions, the organization released translated versions of the Intersectoral Global Action Plan (IGAP) booklet in Sesotho, [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
