Latest News
BAND Utetezi Project Phase 1 – Final report
This report presents findings of the evaluation of the Utetezi project (supported by Band Foundation) which was implemented in six countries' supporting programs aimed at improving access to health services by people living with epilepsy. The evaluation was carried out in Kenya, South Africa, Mauritius, Zambia, [...]
Epilepsy Africa News – Issue 23
Chairperson & Editor’s message A gloomy state of affairs emerged during the period with the advent of the Corona Virus in our Region. The world was affected in all aspects of life, business coming to a near standstill and virtual communication realized. The situation has affected [...]
Epilepsy awareness advocate Erin Davies joins EPF Youth Group
Erin Davies Congratulations to Erin Davies, a young epilepsy awareness advocate from the UK, who has become a member of the European Patients' Forum (EPF) Youth Group. Erin attended the IBE's Young Adult Summit in Dublin last year. The EPF Youth Group is made [...]
A Floral note from IBE’s Chapter in the Czech Republic
Floral scents that benefits many How did one Prague non-profit deal with the extraordinary circumstances of a state of emergency? With 'magic flowers'! These are created by people with epilepsy and can help those in need. The non-profit organization Společnost E operates a flower workshop, 'The [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
