Latest News
WARNING: Please beware email phishing scams
Phishing is a scam where fraudulent emails are sent to people in an attempt to trick them into revealing personal or financial information. There appears to have been an increase in such emails targeting non-profit organisations such as patient associations. Today we have been notified of [...]
International Epilepsy Day Event in Kharkiv, Ukraine
On February, 10th, 2020 in Kharkiv, Ukraine held an International Epilepsy Day event to support patients. This was an initiative of the Bureau of Epilepsy in Ukraine and the Ukrainian League Against Epilepsy, with the endorsement of the International Bureau for Epilepsy (IBE) and SI “Institute [...]
Epilepsy Africa News – Issue 22
Chairperson & Editor’s message We are excited with developments that took place during this period. We had over 15 Chapters celebrate the Epilepsy Day across Africa. Chapters showed their capability in engaging and partnering policymakers, civil society organization and like-minded organization in spreading the message of [...]
International Epilepsy Day 2020 Report
International Epilepsy Day, a joint initiative created by the International Bureau for Epilepsy (IBE) and the International League Against Epilepsy (ILAE), is a global event celebrated annually on the 2nd Monday of February, to promote awareness on epilepsy right around the world. International Epilepsy Day events [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
