Latest News
International Epilepsy News – Issue 4, 2019
The dust has yet to settle on International Epilepsy Day 2020 as I write this short message to you, dear readers. Yet, it is already clear that this has been the best year yet for this important calendar date. IBE and ILAE chapters, epilepsy self-help groups, [...]
International Epilepsy Day 2020 – Art competition winners announced!
To celebrate International Epilepsy Day 2020, we held an international art competition, for all ages, with the theme ‘Friendship and Inclusion’. There were three categories – under 8 years of age (age as of 31st December 2019); between 8 years and 15 years of age (ages [...]
‘YEAH’ – Online Community Group for Young Epilepsy Advocates Launched
The Young Epilepsy Advocates Hub (YEAH) is a friendly space for young people who are undergoing diagnosis or living with epilepsy. YEAH provides access to an online community of friends from all over the world who are dealing with similar issues and challenges. Members can talk [...]
Epicare ERN launch series of educational webinars
Epicare ERN has launched a series of educational webinars with #epilepsy related topics presented by internationally renowned experts. The webinars are scheduled for the third Thursday of the month at 4pm GMT. The online seminars are free to attend but require previous registration. 2020 Webinar Schedule [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
