Latest News
EPI-Focus Issue 14 – Newsletter of the IBE European Regional Executive Committee (EREC)
Dear Friends Time flies and we are already wrapping up the year 2019. Let me highlight some trends and achievements of this year globally and in Europe. In January, the IBE International Executive Committee (IEC) came together with the aim of planning its strategy. Stakeholder engagement [...]
IBE Annual Report 2018
Read the Annual Report
Golden Light Awards
The IBE International Golden Light Awards recognise the contributions of people affected by epilepsy in their community and those who care for them.
Epilepsy Ireland – Meet the Chapter
Paddy McGeoghegan, Communications Officer at Epilepsy Ireland, introduces us to the work of the organisation. Epilepsy Ireland was founded in 1966 and for over 50 years we have been working to achieve a society where no persons’ life is limited by epilepsy. We have achieved [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
Sign Up to the IBE Newsletter
What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
