Latest News
Canadian Epilepsy Alliance/Alliance Canadienne De L’épilepsie – Meet the Chapter
In this article, submitted by Deirdre Floyd, President of Canadian Epilepsy Alliance/Alliance Canadienne De L’épilepsie and IBE Representative, we'll learn the history of the CEA/ACE and about their ongoing work to improve the lives of Canadians affected by epilepsy. Canadian Epilepsy Alliance/Alliance Canadienne de L’épilepsie [...]
Epilepsy Africa News – Issue 18
Chairperson & Editor’s message Welcome to this edition of Epilepsy Africa and very warm greetings to all new readers since our last new regional newsletter went out. It is with excitement that Africa welcomes two new members (Rwanda and Lesotho) to its International Bureau of Epilepsy [...]
International Epilepsy News – Issue 2, 2019
Since the last issue of International Epilepsy News, it’s been a busy time for IBE. The biggest event was the 33rd International Epilepsy Congress in Bangkok. For IBE, a highlight of the congress was the Golden Light Awards, which was a major success. One of the [...]
The Power of Advocacy – Scarlett Paige reflects on the two months since winning an IBE Golden Light Award
On 9th of April 2019 I received an email that would allow me to advocate for epilepsy on an international scale with it I can help epilepsy get the respect it deserves and hopefully people living with it accepted not judged. The email was from Ann [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
