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The Croatian Association for Epilepsy – Meet the Chapter
The Croatian Association for Epilepsy was established in 1998 with the aim of promoting, developing and improving the quality of life of all persons with epilepsy, as well as their families, and enabling a better understanding of the nature of epilepsy and the needs of people affected [...]
Australians living with epilepsy have access to a new helpline!
An Australian-first telephone and email service to support people living with epilepsy and their families has been launched today by Epilepsy Action Australia, the country's longest serving provider of education and support services to people with epilepsy. The Epilepsy Nurse Line, which is available from 9am [...]
Global Report – Epilepsy: a public health imperative
Epilepsy is a brain disease characterized by abnormal electrical activity causing seizures or unusual behaviour, sensations and sometimes loss of awareness. It carries neurological, cognitive, psychological and social consequences and accounts for a significant proportion of the world’s burden of disease. Despite availability of effective and [...]
Caritas Malta Epilepsy Association – Meet the IBE Chapter
In this edition of IBE's Meet the Chapter series Robin Pinkston introduces the Caritas Malta Epilepsy Association Caritas Malta Epilepsy Association was set up in 1996 and is run completely by volunteer workers. Our mission statement is “a better life for people with epilepsy in Malta.“ [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
