Latest News
International Epilepsy News – Issue 1, 2019
This latest issue of International Epilepsy News brings you a detailed report of the Strategic Review meeting that took place in London in January. With participants including members of the International Executive Committee and stakeholders from every IBE region, this successful meeting now provides a clear [...]
Submit a session proposal for AOEC 2020
The Scientific Organising Committee of the 13th Asian & Oceanian Epilepsy Congress (AOEC) taking place in Fukuoka, Japan, in October 2020, invite all members of IBE to consider submitting a session proposal for this congress: https://lh6.googleusercontent.com/FQJDXbavvG9ibEBwnjp4qnd77ogU_8waCI2qXFpwu-MvigF-8viy0QjoerNWBBRJZNOtnDOkJQ=w1594 Please note that the submission deadline is the 3rd [...]
#BrainLifeGoals – EFNA launch grants for EU-based projects raising awareness of brain disorder
Sharing #LifeGoals has become a popular trend on social media. A campaign from the European Federation of Neurological Associations (EFNA) and supported by the International Bureau for Epilepsy (IBE) will put a new spin on the trend by instead seeing patient advocates and supporters share their [...]
Winners of the 2019 IBE Golden Light Awards are announced
The IBE International Golden Light Awards recognise the contributions of people affected by epilepsy in their community and those who care for them. Candidates were nominated by the IBE chapter in which they are involved (as a member, volunteer, board or staff member) and were [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
