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Australian Coalition Government commits$20M to people living with epilepsy
The Australian Coalition Government will commit $20M over four years to support people living with epilepsy, Minister for Health, Greg Hunt, announced on Saturday. The funding will enable the expanded delivery of a range of national epilepsy initiatives that will reduce the chronic health impacts experienced [...]
International Epilepsy Day 2019 Report published
International Epilepsy Day, a joint initiative created by the International Bureau for Epilepsy (IBE) and the International League Against Epilepsy (ILAE), is a global event celebrated annually on the 2nd Monday of February, to promote awareness on epilepsy right around the world. With IBE and ILAE [...]
International Epilepsy News – Issue 4, 2018
If one of the goals of the IBE is to allow the voices of people with epilepsy to be heard, then we have certainly delivered in this issue of the magazine. Our cover features a photo of Zhang Chensu, a young woman from China who experienced [...]
A Golden Opportunity to recognise and award a young person affected by epilepsy in your chapter
Is there a young member of your association who is affected by epilepsy, or cares for someone with epilepsy, who has been a “shining light” for others and, so, is deserving of recognition? We are calling on all IBE chapters around the world to submit [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
