Latest News
Epilepsy Africa News – Issue 16
Chairperson & Editor’s message This is the 16th issue of Epilepsy Africa newsletter. In 2018 we published 11 issues, then we took the decision to publish once in two months. In this report you will find information about the advocacy projects funded by the BAND Foundation. [...]
As Easy As Drinking a Glass of Milk – Italian campaign sees epilepsy information printed on milk cartons
The Italian League Against Epilepsy (LICE) and Italian Association Against Epilepsy - Veneto (AICE) have launched an initiative that aims to increase public understanding of epilepsy, with the hope that it will be replicated in other countries. What is more common than a carton of milk? [...]
New Video in the Campi Series- Let’s learn about Epilepsy and Sport!
To celebrate International Epilepsy Day 2019, we present the fourth video in our series featuring International Epilepsy Day mascot, Campi the seahorse. In this video, Campi meets a new friend- Stella Starfish, who also has epilepsy. Stella loves to play football but her team coach is [...]
Epilepsy Africa News – Issue 15
Chairperson & Editor’s message This is the 15th issue of Epilepsy Africa newsletter that combines November and December. In this report, you will read about how the Kingdom of Eswatini is preparing for International Epilepsy Day. Michael and Kenneth have provide us with a detailed report [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
