Latest News
International Epilepsy News – Issue 3, 2018
Although never intended, this issue could well be considered a ‘Women’s Special’ because it contains the personal stories of a number of wonderful women who did not allow a diagnosis of epilepsy to hold them back. As Youssouf Noormamode puts it so well in his story [...]
Epilepsy Africa News – Issue 14
Chairperson & Editor’s message This is the 14th issue of Epilepsy Africa newsletter. In this report you will find a detailed report about the human rights workshop held in Mauritius. The report was prepared by Ms Nsachilwa, our Secretary who attended the workshop. I wish to [...]
IBE Annual Report 2017
Read the Annual Report
Epilepsy Africa News – Issue 13
Chairperson & Editor’s message This is the 13th issue of Epilepsy Africa newsletter. In this report you will find information about the donation of medication to the epilepsy association in Kenya, KAWE. The report was prepared by Thelma Njamwea and I wish to thank her. The [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
