Latest News
Epilepsy Africa News – Issue 12
Chairperson & Editor’s message This newsletter has been published each month for a year now. It gives me great pleasure to dedicate my time to this publication. In this 12th edition of Epilepsy Africa news, you will find a report from Cameroon. The cover picture, taken [...]
Results of Survey of Young Europeans with Neurological Conditions
In celebration of World Brain Day 2018, the European Federation of Neurological Associations (EFNA) has released results of its recent Survey of Young Europeans with Neurological Conditions: www.efna.net/efnayoungpeoplesurvey/ Between March 12th and May 15th 2018, 1368 responses to the survey were received from 39 countries. Respondents [...]
EPI-Focus Issue 12 – Newsletter of the IBE European Regional Executive Committee (EREC)
Message from the Chair: We are happy to present the latest issue of Epifocus, the magazine from and for the European Chapters of IBE. This issue is packed with articles from a.o. Germany, Malta, Norway, Slovenia and Spain, showcasing recent activities. We are introducing a new [...]
Epilepsy Africa News – Issue 11
Chairperson & Editor’s message Welcome to the 11th issue of Epilepsy Africa newsletter. In this newslletter you will find information about two funding opportunities: The Advocacy Project funded by BAND Foudnation and the promising Strategies Project funded by the IBE. I urge you to apply before [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
