Latest News
Epilepsy Africa News – Issue 10
Chairperson & Editor’s message This is the 10th issue of Epilepsy Africa newsletter. In this report you will find information about projects that were submitted by young people with epilepsy. You will also find reports from chapters and what to expect at the 4th African Epilepsy [...]
Pictures from the 12th Asian & Oceanian Epilepsy Congress, Bali
The 12th Asian & Oceanian Epilepsy Congress took place in Bali from June 28 to July 1, 2018. Below are a selection of photographs taken over the course of the event. You can see a complete album of images in our Facebook album here. You can visit [...]
Epilepsy & Society Symposium held in Bali
The Epilepsy & Society Symposium was held yesterday (July 1st) in Bali, alongside the 12th Asian and Oceanian Epilepsy Congress. An exciting programme of great interest to both individuals living with epilepsy and for staff from community organizations supporting people living with epilepsy was been developed [...]
Three recipients win IBE Golden Lights Awards in Bali
On Thursday, June 28th, winners of the IBE Golden Light Awards were announced in Bali and presented during the opening ceremony of the 12th Asian & Oceanian Epilepsy Congress. The title of the award was changed to Golden Light Awards in 2016 to recognise that people [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
