Latest News
13th European Congress on Epileptology Patient Forum – Vienna
„Epilepsie aktiv leben – Anfälle erkennen, beraten und behandeln“ An event (German language) will take place during the European Congress on Epileptology in Vienna in September. The patient forum will see experts serve to inform the population about epilepsy, followed by an open Q&A session. Self-help [...]
Epilepsy Africa News – Issue 9
Chairperson & Editor’s message I warmly welcome you to our 9th issue of Epilepsy Africa newsletter. And I have exciting news for all our young people with epilepsy: the IBE is funding projects this year again. Thank you IBE for this kind of support that will [...]
International Epilepsy News – Issue 1, 2018
CONTENTS WINNING PHOTOS - International Epilepsy Day Competition GLOBAL CELEBRATION - International Epilepsy Day social media EMA REPORT - Recommended changes to use of valproate PARLIAMENT SUPPORT - European MEP group grows MEET JANICE - Ms Canada shares her take on how to deal with epilepsy [...]
Epilepsy Africa News – Issue 8
Contents of this Newsletter: Report from Sierra Leone Report from D R Congo Report from Mauritius on Alliance for Rights Africa Towards Disability Inclusion workshop How to ask your government to take action about the WHO Resolution on epilepsy Click here to read the newsletter [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
