Latest News
The 2017 ILAE classification of seizure types and the epilepsies: what do people with epilepsy and their caregivers need to know?
The International League against Epilepsy (ILAE) published, in the April 2017 edition of Epilepsia, three companion articles on the classification of seizures and the epilepsies. These represent a long-awaited update on the original 1981 and 1989 publications and provide a modern descriptive template. The new classification [...]
epiXchange 2018 brings together Europe’s best brains to pave the way for future epilepsy research
Around 50 million people worldwide suffer from epilepsy, making it one of the most common neurological diseases. To decrease this figure and pave the way for future ground-breaking epilepsy research, seven large EU-funded projects have joined forces. epiXchange 2018 is a unique global community building event, [...]
Epilepsy Africa News – Issue 7
Contents of this Newsletter: Report from Zambia Funding and fundraising for the region WHO resolution poster Click here to read the newsletter
Epilepsy Africa News – Issue 6
Contents of this Newsletter: Report from Zambia Call for committee members Call for chapter reports Research carried in Africa: conclusions Poster for self-evaluation Click here to read the newsletter
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
