Latest News
Epilepsy Africa News – Issue 5
Contents of this Newsletter: New year messages from Chairperson & Secretary Call for young person to join AREC Epilepsy day 2017 activities Welcome Lesotho Advocacy poster Click here to read the newsletter
EPI-Focus Issue 11 – Latest News from the IBE European Regional Executive Committee (EREC)
IN THIS ISSUE: Putting epilepsy in the picture Meet the team! Letter from the President Political victory in Denmark News from Turkey Epilepsy care management in Austria Epilepsy Ireland recognises special volunteers Save the Date! - International Epilepsy Day 2018 IBE European Region Facebook Page Click [...]
International Epilepsy News – Issue 4, 2017
CONTENTS SUPPORT DOGS - Help with a survey on epilepsy support dogs ONE MINUTE EXPLANATION - Norwegian series of epilepsy vidoes with fast lessions WHAT’S THE PROBLEM? - EMA Public Hearing on sodium valproate use in women EPIPICTO PROJECT - EU funded guide without words YOUTH [...]
Epilepsy Africa News – Issue 4
Contents of this Newsletter Chapters spotlight Kenya and South Africa Onchocerciasis meeting report by Anthony Zimba, IBE Treasurer Interview with Lungelo Dube, Swaziland Opportunities and resources for associations Photos Read the Newsletter
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
