Latest News
Advocating for Better Epilepsy Management in Schools
An interactive toolkit and policy paper, focusing on improving the management of prolonged convulsive seizures for children in schools, were published in October 2017 by a multidisciplinary expert group consisting of clinical, patient and educational experts. The IBE was part of this expert group. Unlike most [...]
EPILEPSY AFRICA NEWS – Issue 3
Contents of this Newsletter Introducing the Alliance for Right – Africa Disability Inclusion (ARADI). Swaziland Epilepsy Organization hosts epilepsy run/walk. Minutes of a meeting of African delegates at the IEC in Barcelona. Photos; Burkina Faso, Kenya, Mauritius & OAE2017. Resources and weblinks. Poster-different names of epilepsy. [...]
Annual Report 2016
2016 was a busy and productive period for IBE as we consolidated ongoing activities and developed new initiatives in our efforts to improve the quality of life of all those affected by epilepsy. As an international organisation for national epilepsy associations, IBE exists [...]
Epilepsy Africa News – Issue 2
Contents: Message from Youssouf Noormande, outgoing Chairperson Message from Jacob Mugumbate, incoming Chairperson Know your new committee members Notes from the General Assembly Congress highlights Resources Social media contacts Download the Newsletter
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
Sign Up to the IBE Newsletter
What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
