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International Bureau for Epilepsy

WARNING: Please beware of email phishing scams

Phishing is a scam where fraudulent emails are sent to people in an attempt to trick them into revealing personal or financial information.
There appears to have been an increase in such emails targeting non-profit organisations such as patient associations. Today we have been notified of a number of emails being received that claimed to have been sent by a member of the IBE Executive Committee. These emails are fraudulent and have nothing to do with IBE.

When dealing with uninvited contacts from people or businesses, whether it’s over the phone, by mail, email, in person or on a social networking site, always consider the possibility that the approach may be a scam. Read more

Youth Team

Latest News

IBE Africa
3103, 2017

Updated Epilepsy Classification May Lead to Advances in Diagnosis, Treatment, and Research

It has been nearly three decades since experts published a classification system related to epilepsy. Now, the International League Against Epilepsy (ILAE) provides an update to systems that includes many types of seizures not captured in the older version, allowing clinicians and patients to make more [...]

2402, 2017

IBE Elections 2017-2021 – Balloting Underway for Regional Vice Presidents

Balloting is now underway to elect the 7 Regional Vice Presidents for the period 2017-2019. The IBE chapters are invited to ballot in the elections to fill the Vice President positions in Africa, Eastern Mediterranean, Europe, Latin America, North America, South East Asia and Western Pacific [...]

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Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.

Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.

Our strategic priorities are to ensure that epilepsy is

recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.

We work to achieve these priorities through a range of programs including:

  • Public Information and Health Education
  • Advocacy
  • International Best Practice Exchange
  • Helping Build Communities of Care

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What is Epilepsy?

Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.

Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.

People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.

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