Latest News
IBE Elections 2017-2021 – Balloting Gets Underway
Following close of the nomination period, IBE chapters are now invited to ballot in the elections to fill the three officer positions - President, Secretary General and Treasurer – on the International Executive Committee for the term 2017-2021. Ballot papers have already been circulated and the [...]
Director JJ Abrams Calls on Public to Talk About Epilepsy
Star Wars and Star Trek Director, J.J. Abrams, has called on people to talk about epilepsy in a new public service announcement for the TalkAboutIt.org campaign. Abrams told viewers that "Lives could literally depend on it", going on to list the statistic for the brain disease in [...]
Epilepsy Africa News – Issue 1
Contents: Epilepsy in Africa: is there a sustainable way forward Epilepsy Week in Zimbabwe and visit by Mr. Zimba Namibia & SA celebrate their 2 epilepsy days Proposed ILAE commission for Africa Epilepsy Clinics: challenges in Africa Overcoming epilepsy: Dan from Uganda tells his story Executive [...]
Evaluation Opens on EU Scheme Which Has Funded Epilepsy Projects
The European Commission has begun a public stakeholder consultation which will feed into the interim evaluation of Horizon 2020, the EU's €77 billion research and innovation funding scheme running from 2014 to 2020. H2o2o has already funded several epilepsy-focused, and other neurological, research projects. More information on these [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
