Social Accomplishment Award
Cassidy Megan Cassidy Megan is 24 years old and from Nova Scotia, Canada. She is the founder of Purple Day. Purple Day is an epilepsy awareness day that is recognized and celebrated globally every year on March 26th. Cassidy founded Purple Day in 2008 due [...]
International Epilepsy Day 2017 Competition – Create Artistic Waves
CREATING ARTISTIC WAVES! Put yourself in the frame for International Epilepsy Day, Monday, February 13, 2017... enter our competition.
Origins of the ILAE: 10 Instalments Now Available
Over the past few years, IE News has been included regular articles detailing the history of ILAE as documented in its newsletters. Now, as we reach the final instalment of this excellent series, produced by Ted Reynolds, a former President of ILAE, a compilation of all [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.