Latest News
Finnish Epilepsy Lifetime Award Presented to Prof Matti Sillanpää
The Finnish Epilepsy Lifetime Achievements Award was given to professor Matti Sillanpää by Finnish Epilepsy Association, Epilepsy Research Foundation and Finnish Epilepsy Society on August 4. This Award recognises senior members of the society who have a record of lifetime contributions and accomplishments related to epilepsy [...]
IE News: Issue 2 – 2016
Welcome to the latest issue of IE News, where you can find a wealth of stories and articles of interest to all: Meet the Golden Light awardees from Hong Kong Learn all about ERNs Enjoy the final episode of Ted Reynolds history of ILAE Find out [...]
Epilepsy Website Fills Patient Information Gap
When a person, or their loved one, is diagnosed with epilepsy it can be a stressful time. One of the most important things is getting the appropriate information on the brain disease and finding out how to continue everyday life despite it. A site called Living [...]
Swaziland Receives Donation of 3 EEG Machines
The Swaziland Epilepsy Organization has reported to us that a Consultant Clinical Neurophysiologist from the United Kingdom has offered Swaziland three EEG machines free of charge as well as TeleEEG reporting over the internet. The consultant, Dr Steve Coates, has set up EEG equipment and trained staff in Myanmar, [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
