Latest News
IBE Day at the 9th LACE in Cancún
The programme for the IBE Day at the 9th Latin American Congress on Epilepsy is available on the congress website. See more about the congress at www.epilepsycancun2016.org and the IBE Day detailed schedule. The day is schedule for Saturday, August 20 and will run from 9am to 5.30pm. The [...]
Epilepsy & Society Symposium at the11th AOEC
The programme for the Epilepsy & Society Symposium on Sunday, May 15 promises to be both educational and engaging with innovative topics being discussed. Renaming epilepsy has been a major event and talks will focus on the impact and experiences that this has caused. Nonetheless, the [...]
Epilepsy Gains Prominent New Advocate in Harrison Ford
Harrison Ford has joined with other epilepsy advocates at an NYU event to highlight the affects of the brain disease. Ford explained that his daughter, Georgia, has epilepsy and that the Langone Medical Center’s Find a Cure for Epilepsy and Seizures (FACES) has helped his family. [...]
14th European Conference on Epilepsy & Society Registration Opening Soon
The 14th European Conference on Epilepsy & Society will take place in Prague from September 15 to 16. Registration for this event will open shortly at epilepsyandsociety.org. The conference aims to inform people with epilepsy and their families, as well as those working in the field [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
