Latest News
Annual Report : 2014
2014 was the first full year of the current term of office and was a busy year of activity and achievement. One of the first activities of the year was European Epilepsy Day in February. This was also to be the last European Epilepsy Day as [...]
Yes I Can : Photography Competition for International Epilepsy Day 2016
Announcing a photography competition for International Epilepsy Day 2016 Photography used to be regarded as a hobby, with cameras taken out of their cases to capture special occasions. In recent years taking a photo (or numerous photos) has become part of everyday life. With the invention [...]
Book of Condolences : Hanneke de Boer
Hanneke de Boer, RIP: 1946 – 2015 It is with tremendous sadness that IBE announces the passing of Hanneke de Boer on Monday 12th October, following a long illness. Hanneke was truly one of the greatest and longest serving advocate for people with epilepsy – not only in [...]
Former MEP Gay Mitchell receives EFNA award
NEUROLOGY ADVOCACY AWARDS 2015 An initiative of the European Federation of Neurological Associations Gay Mitchell receives the award for "Patient Advocacy by a European Policy-Maker" For almost 10 years, Gay Mitchell has been a consistent and dedicated campaigner for people with epilepsy in Europe, following many [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
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What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
