Latest News
Ambassador for Epilepsy – List of Ambassadors I – P
Iivanainen, Dr Matti Jacoby, Dr Ann Jain, Prof Satish Jallon, Dr Pierre Janz, Prof Dieter Jeavons, Dr Peter M Jetté, Dr Nathalie Jilek-Aall, Dr Louise Johannessen, Dr Svein L Johansen, Mr Bent Johnson, Mrs Eva Jones, [...]
Hanneke de Boer, RIP
Hanneke de Boer, RIP 1946 - 2015 It is with tremendous sadness that IBE announces the passing of Hanneke de Boer on Monday 12th October, following a long illness. Hanneke was truly one of the greatest and longest serving advocate for people with epilepsy – not only [...]
IBE Welcomes Two New Chapters
It is with great pleasure that IBE welcomes the acceptance of two new Chapters. The new member associations are: MOLDOVA - Full member The Association Of Supporting Children With Special Needs Visit the website of AOSCCS www.asccs.md/en ITALY - Associate member Italian Federation Epilepsies Visit the website [...]
European Study on the Burden and Care of Epilepsy (ESBACE)
The general objective of the pan-European research project, ESBACE (European Study on the Burden and Care of Epilepsy), is to facilitate the development of high-quality epilepsy care at all stages of the disease, equitable across EU countries. ESBACE will provide data on the burden of epilepsy and on current provision and [...]
Established in 1961, the International Bureau for Epilepsy (IBE) is an international organisation for national epilepsy organisations (IBE chapters) that exists to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.
Our members are patient/family focused and driven organisations and we work collaboratively with our professional and government partners worldwide.
Our strategic priorities are to ensure that epilepsy is
recognised as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected wherever they might live; that people with epilepsy are empowered to maximise quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted.
We work to achieve these priorities through a range of programs including:
- Public Information and Health Education
- Advocacy
- International Best Practice Exchange
- Helping Build Communities of Care
Sign Up to the IBE Newsletter
What is Epilepsy?
Epilepsy is one of the most common serious diseases affecting more than 50 million people globally. There are many difference causes for epilepsy including genetic disposition, head trauma or brain tumour.
Epilepsy affects almost every aspect in the life of the person diagnosed with the disease. For many people with epilepsy, the stigma attached to the disease is more difficult to deal with than the disease itself.
People with epilepsy have a 3-6 times greater risk of premature death. Many of the deaths from epilepsy could be prevented with appropriate medication and treatment.
